Living with Mitochondrial Disease

What does it mean to live with mitochondrial disease?

One in 4000 adults and children have mitochondrial disease ("Mito") and more are being diagnosed each year.

Watch the experience of 4 different people whose lives have been changed by a disorder and a disability that affects the powerhouse of the cell. Their disease may be invisible, but their challenges are great.

Learn more and make a difference at http://www.mitoaction.org

Produced by:
Wendy Fine: Producer
Nahid Shahabi: Assistant Producer
Corey Sheehan: DP
Zeen Rachidi: Editor/Lighting
Kevin Mee: Sound/Grip
Nick Cali: Sound/Grip/ Assist. Editor
Evan Warren: Second Camera

Category:

Nonprofits & Activism

Tags:

• mitochondria
• mitoaction
• mitochondrial
• disease
• disability
• advocacy
• special
• needs
• children
• MITO

[dixontard1]

i have micicondrea i an 11 and i can not see very well my balince is of and i am loseing my hearing it has went down threw my dads side

[tangerinetigerr]

with Christ's help i have battled the terrible effects of diabetes

for 20 years, both with poor eyesight, as well as hand mobility,

and now dupuytrens contracture in both hands, along with a

history of epilepsy. i have injected myself more than 36,000

times with insulin; i can handle it but i cringe when children

like the ones in this video have to have that done =[ God

bless you all, especially that little darling who wants to be a

doctor when she grows up. S-80711 123AM

[oknej12]

Maybee the solution is sodium DCA which can be bought at really cheap price at pharma-dca. I picked that story when I searched for cure for cancer.

I know they add sodium DCA to cures for mitochondrial disease but these medications are expensive and with lower quality. Please check it - it may help or maybee not, I don't know.... Just check and keep up good faith! Every disease you must win in you head first - this is more than half of succsses!

[pantyflash]

Like, even though your mitochondria are hosed, you're very cute. You go, girl!

[KatherineDeGuia]

im 15 and i was diagnosed when i was 1. im doing my biology project on it right now actually. this video helped so much!

[weenz05]

@falseprophetbuster1 i have a mito disorder and i am 18. I was just diagnosed a year ago. For younger children they are born with a known defect and most of the time have a higher severity level then others. The reason some adults develop mitochondrial disease is because the cells become tired and do not function properly causing lack of energy.

This video may help explain that a little better,("the way energy is made".)by mitoaction

[gfcfmomofmany]

I and my children have mito. I started a group over on FB, Mito Families! for anyone affected by mito. If you need others who understand please join us.

[ghostgate82]

I too have Mito. My parents knew something was wrong at about age 5. I'm now 28. My symtoms are as follows. Extreme pain, low weight, very tall, and no energy. Top that off with narcotics and you have a nocturnal zombie on your hands. My girlfriend left me because of it all. Does any of this sound familier to anyone out there? I feel very alone with this disorder. My body is a prison.

[saleenonly]

I hav mito. I was diagnosed after about a dozen muscle, skin, and nerve biopsy's. I'm only 17 and I hav had since I was 3. I hav learned to deal with the pain, but it sucks taking so much medication.

[somethinggoeshere1]

=( Why is the word not spread about this disease? This is worse than cancer and there is the same amount of people with cancer in this. Don't get me wrong, cancer is horrible, but this is so unknown to the world...