thank you all for the comments and sorry i never knew these comments were here or i would have contacted or written back sooner. my son aiden is doing well. he is actually cured from dba after going thru a bone marrow transplant. he has not been on meds or needed blood in almost two years.
please look me up on facebook if you have any questions or would like to talk.
I'm a dbf also. I had been on prednisone for 8 years, until recently I was put back on blood transfusions. I had it really good for those 8 years. I knew it's terrible to be on transfusions a lot, but this video really made me remember that I'm not in Kansas anymore. (Laughing half way)
I hope the lil one gets a transplant and goes well. i was 2 days away befor myn befor pulling out because i was CMV positive and that would of caused more problems.
hey insanepyrojester. I am actually another fellow dbf person. im Nick. I have xjade aswell to keep the iron down aswell, got so sick of the needles every night for the past 17 years, im 19 now. its amazing how much your skin clears up after getting on the xjade. Your aussie pal Nick.
ohh past 40, lucky. they told ma mom past 21 ^_^ still here. and happyface, ask your doctor about xjade, it made my iron account drop 3 thousand points. please mail me back, never tlaked to anotherperson with dba
I'm 14 and have DBA it would be nice to talk to someone who has it too I never have before
bloodsuckindramqueen 6 months ago
My son has the same problem and it will be nice if i had someone that i can talk about it. he is already 12 months old
juany1012 6 months ago
thank you all for the comments and sorry i never knew these comments were here or i would have contacted or written back sooner. my son aiden is doing well. he is actually cured from dba after going thru a bone marrow transplant. he has not been on meds or needed blood in almost two years.
please look me up on facebook if you have any questions or would like to talk.
carsonsmommy27 1 year ago
@insanepyrojester
please look me up on facebook.
my name is cami shuman and you posted this comment under my sons video 2years ago
carsonsmommy27 1 year ago
I'm a dbf also. I had been on prednisone for 8 years, until recently I was put back on blood transfusions. I had it really good for those 8 years. I knew it's terrible to be on transfusions a lot, but this video really made me remember that I'm not in Kansas anymore. (Laughing half way)
JuicyDBASE 2 years ago
I hope the lil one gets a transplant and goes well. i was 2 days away befor myn befor pulling out because i was CMV positive and that would of caused more problems.
bushswagie 3 years ago
hey insanepyrojester. I am actually another fellow dbf person. im Nick. I have xjade aswell to keep the iron down aswell, got so sick of the needles every night for the past 17 years, im 19 now. its amazing how much your skin clears up after getting on the xjade. Your aussie pal Nick.
bushswagie 3 years ago
ohh past 40, lucky. they told ma mom past 21 ^_^ still here. and happyface, ask your doctor about xjade, it made my iron account drop 3 thousand points. please mail me back, never tlaked to anotherperson with dba
insanepyrojester 4 years ago