Connor and Makhi - Fighting Neuroblastoma and OMS

Opsoclonus myoclonus is an extremely rare Neurological disorder. Only 50 kids each year are diagnosed with it worldwide. It is characterized by an unsteady, trembling gait, myoclonus (brief, shock-like muscle spasms), and opsoclonus (irregular, rapid eye movements). Other symptoms may include difficulty speaking, poorly articulated speech, or an inability to speak. A decrease in muscle tone, lethargy, irritability, and malaise (a vague feeling of bodily discomfort)
Several treatments, including chemotherapy, are used in an attempt to induce a neurological remission. Unfortunately, relapses are common. The immune system can be activated as medicines are withdrawn, or if the child comes down with a cold or fever. The attack on the brain continues with each relapse.


All pictures and OMS information from:
www.makhiwoodman.blogspot.com
http://iwillliftmyeyesconnorkhoury.blogspot.com/

Music: Hope Now - Addison Road

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[Jenn0714]

Praying for these two fighters and their families. What precious little ones. Stay strong. God is in Control.

[xxValidxVictoriaxx]

Living with neuroblastoma is difficult :( everytime someone asks if i want to donate for reseach, i say yes without hesitation. i know what its like. No one should have to live with this.

[kellouuu]

my heart aches every time I see it, there are so many children in pain , pray and donate please...

every one needs to get involved