Living with Multiple Sclerosis - CCSVI Follow-up.mpg
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Uploader Comments (laurenvparrott)
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it comes to CCSVI, the interests of the neurologists and the societies are best served by having CCSVI marginalized, by not funding any CCSVI treatment research, and by lobbying the government to not allow any treatment of impaired venous drainage in persons with MS despite the obvious health hazard such a condition represents. The reasons for such actions are straightforward.
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Hi Marlo, I have read ur book and was inspired by ur attitude its the way to deal with ms!! and Lauren I watched ur videos when I first got dx you are also amazing in the way in which you deal with ms, I too think CCSVI is the way forward I have a doppler scan booked in glasgow and poland whichever is sooner!! wish us all luck!
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@teslagirlM Hi Marlo!! just read your book found it a fantastic read!!
and I've been watching your video's for a while Lauren!! I Hope ur ok and I totally feel the same about CCSVI I have my name down for the doppler scan in Glasgow and Poland so watch this space!! TC guys!! x x x
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Living with Multiple Sclerosis - getting a Tysabri infusionby laurenvparrott12,267 views
I don't think tysabri is available for all ms patients in Britain? The NHS seems to think it's too expensive for the results it gets over here? So if I want to get it I will have to pay full price for it? Such is life?
Richie979 7 months ago
@Richie979 Oh gosh, I really don't know about the finances of the drug - I hope you're feeling well!
laurenvparrott 7 months ago
I Agree with you! I have been on Tysabri for 3 years and I have had a couple exaserbations, however My MRI's have shown ZERO new lesions! so I am doing pretty well on Tysabri. And I think CCSVI is wonderful, and after some more research ??? who knows. But regardless I will continue on Tysabri even If Iever get the Zaboni Zap! :) take care sweetie , Love Violet
violetmatthers 1 year ago
@violetmatthers Hi Violet! I agree with you!
laurenvparrott 1 year ago
Got Liberation 7 days ago today. Been on most ms drugs except Tysabrii, even did Novantrone. I feel wonderful, brand new since CCSVI, check out my Youtube channel. Liberation is real! No more drugs for me~
nappycloud9 1 year ago
@nappycloud9 Congratulations!! I am so happy for you! I will be looking at your channel!
laurenvparrott 1 year ago