Jonah aged 5 Neuroblastoma with opsoclonus myoclonus
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Uploaded by wowdurran on Oct 20, 2008
My son Jonah aged 5 with a very clear shot of his dancing eyes. (opsoclonus myolclonus)I shot this video over the top of the hospital tv and you can see when he spots I am there. Background info: Jonah suddenly stopped walking last October and then his arms went all wobbly and then his eyes went. It took 6 weeks for the hospital in London to find the tumour. He has had a resection (operation to remove the tumour) but unfortunately the tumour is growing again. He has dexamethasone steroids IV through his port each month but other than that has had no other treatment. As you can see from the video, he is still a very happy little boy regardless of all the problems he has!!
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Uploader Comments (wowdurran)
Top Comments
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i'm a med student learning for my neurology exams.
thanks for sharing this video and helping us glimpse at this extreamly rare disease.
5 months ago 3
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at least they didn't take your smile away.
1 year ago 2
All Comments (27)
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6 weeks to find the tumor? Opsoclonus together with the "wobbly" legs (hypotonia) you describe is CLASSIC text book presentation for neuroblastoma, and it's also the most common childhood tumour outside of the head. It is so classic that it's a question asked to medical students. It would have taken a single imaging study and 1 day to find the tumor. You could sue the hospital for negligence/loss of time in treatment.
Best wishes, best of luck.
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THank you for sharing this video. This really helps me as a Pediatrician learning about this disorder.
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I am an eye doctor studying for my final exams. This video is incredibly helpful. Thank you. Best of luck to Jonah.
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Studying neuroblastoma (in med school) and this video helped. Thanks for sharing and I wish the best for Jonah.
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There have been many cancer cures, but they all have been systematically suppressed by the cancer establishment, because they can't make much money off them.
Nutrition has been proven to cure cancer.
Look up some cancer cure documentaries. A nice one is "The Beautiful Truth".
watch?v=wvzDHGLEUyw
"Test Everything, Hold on to the Good." -1 Thessalonians 5:21
God bless, Jesus is Lord!
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He has the most beautiful eyes!
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He'l GROW UP TO BE A PERFECT MAN :)
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How is he now?
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Thank you for all your comments, just to let you know that Jonah is still unwell and although his Opsoclonus myolclonus has improved and he is able to walk around. He still has traces of mobility issues and his tumour has a steadly grown in the past 4years. He is now comming up to his 9th birthday and he is such a joy in our life.
wowdurran 7 months ago