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Advocates are Leaders in BioBanking

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Uploaded by on Jun 4, 2010

Meet Sharon Terry, President/CEO of Genetic Alliance, who established the PXE (pseudoxanthoma elasticum) International BioBank. Here Sharon discusses the important role for advocates in biobanking, how she became involved in the field, the challenges she faced, and how advocates working together can make a difference.

Meet Sharon Terry, CEO of Genetic Alliance, who established the PXE (pseudoxanthoma elasticum) International BioBank. Here Sharon discusses the important role for advocates in biobanking, how she became involved in the field, the challenges she faced, and how advocates working together can make a difference.

For more information about Genetic Alliance BioBank, visit www.biobank.org.

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Nonprofits & Activism

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  • ust would like to thanks for the video. Like it. Thanks :)

  • I like how this starts out sounding like a mom-and-pop operation, and then it becomes an appeal to save the world. What a fascinating story and heartfelt call to action. I really appreciate your videos.

  • very impressive

  • Thank you!

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