BEHCET'S DISEASE - Explained

A full and very educational piece on Behcet's Disease that explains this rare, debilitating autoimmune disease. Features patient stories, Sanya Richards and Board members of the American Behcet's Disease Association that discuss symptoms, diagnosis and how to help.

Category:

Nonprofits & Activism

Tags:

• ABDA
• Behcet's
• Behcet's Disease
• Behcets
• Behcets Disease
• Bechets
• Sanya Richards
• BD
• Silk Road
• Silk Route
• Vasculitis
• Autoimmune
• Lupus
• MS
• Behcet
• Behcet's Syndrome

[AmericanBehcets]

You can find out more aobout Behcet's on facebook at

abda.behcets

[millwrght4ever]

in a flare right now.has been ongoing for about 4 months. wish i could forsee the future. as i am at this point right now.no one can give an answer.started steroids today with my numerous other meds that i take.i have only seen my condition deteriate not getting any better. well at least the vomiting has subsided. keeping my finger crossed when i can.hoping they will find a drug regime that will work. keep praying for a cure.

[JEEardley]

... I then also started getting many painful mouth ulcers that never seamed to disappear. When I went to see the eye specialist, she noticed I could hardly talk, and she asked to look in my mouth. She called in the lead doctor who also examined my eye and mouth, and told me "We think you have Behcet's", I went to see a rheumatologist who gave me the diagnosis, and said that my frequent black outs were caused by an inflamed vessel in my brain. I have medication now and feel great!

[JEEardley]

Since I was little, I've never felt quite right. never been lively, found it hard to concentrate in school. When I was 14 I started having black outs. Doctors told me very slim teenage girl tend to faint and it's quite normal, so I excepted that. But when one of my friends started having faints, they way she described it was not the same, she would get dizzy and slowly fade out, but I just snapped out. When I was 17 I got glandual fever, and days later lost the vision in my right eye...

[aktoyjumper]

@livinluxuriously I'm sorry, what i wrote was very unkind and wrong.

[otakixus2]

Watching "Itoshi Kimi e" and it's about a guy with this disease and how he is trying to manage it in his everyday life and around the people he knows. There are other rare diseases like the XP disease (skin cancer) and I learned about it from Taiyou no Uta (TV series, Movie) and spinocerebellar degeneration disease from 1 Litre of Tears (TV Series, Movie). I never knew about these rare diseases and it's saddening to see they exist and there is no cure for them. :( ... We'll find a cure one day.

[latinqueen3777]

My mom was diagnosed with Behcets 15 yrs ago and is blind from one eye and almost blind from the other. It started with her eye sight that left her blind within the first yr of doctors trying to find out what was wrong with her.Through out the yrs she has had the joint pain and ulcers in her mouth but the disease has had an impact on her heart as well.Hope they find a cure for this in the near future..

[REMIX8604]

its good to finnally have an answer tho

[BabieGirl954]

I've done some research on this Disorder, and I know there's a LOT more information for me to find out about this Disease. Its sad to know the things that some people go through BEFORE they find out the ACTUAL condition that they have.

[Qla1320]

i have the curse too but i do feel a lil better to know im now alone. ive be dealing with it for 3 years now and it took all most a year of in and out the houspital till i got a doctor to help me

[PRAET0R1ANN]

I got them all in my mouth, I couldn't eat for 10 days, and I also got them around my penis, its fucking horrible