NF1
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Uploaded by mom2all9106 on Nov 4, 2007
NF,Neurofibromatosis,
Lynzee is 16 who struggles daily.
56 videosYouTube Mix for Creed- 6:03
Neurofibromatosis Campby CTForg17,176 views
- 3:07
Neurofibromatosis (NF1) Awareness by Naomi D'Amato.by naomidamato12311,405 views
- 4:37
neurofibromatosis and jordanby cherrylips1979935 views
- 2:40
Cole's Crew fights Neurofibromatosisby jrutter7515 views
- 2:37
ABC News Report on Neurofibromatosis with Reggie Bibbsby adgiant3,501 views
- 8:06
A Lesson in Patients part 1by KNOTTYMAN1,534 views
- 1:40
NEUROFIBROMATOSE-NEUROFIBROMATOSYSby Edneuro200824,837 views
- 5:42
Memory of Morrisby mom2all9106537 views
- 4:15
Coffeehouse for a Cure slide show 2009by dkacams659 views
- 6:48
NF Fighterby mom2all9106882 views
- 3:04
NEUROFIBROMATOSISby lilbethy848,279 views
- 3:54
giveDerekALiftby giveDerekALift516 views
- 2:40
Achondroplasia: Genetic Causesby lukethezhou4,997 views
- 4:50
Running with our Hearts and Legsby CTForg740 views
- 0:12
Neurofibromatosis Type 1by nfgal42,592 views
- 5:25
NF Team Carter Movieby NFteamcarter3,205 views
- 6:12
Neurofibromatosis type 2~NF2 Awarenessby JaimeC7293,532 views
- 1:41
Ben Davis student overcomes challenges to help homelessby 13WTHR691 views
- 3:36
AQUA ***** MY OH MYby jok1009,529,937 views
- 4:48
Neurofibromatosis & Cancer Took Her Down, the Lord Took Her Upby sueburke777776,320 views
I have that
jessbritt121 2 weeks ago
I don't have learning disabilities...I have no problem with that. I have those cafe-au-lait spots, neurofibromas..cystic lesions in my brain, scoliosis, had early puberty and now I'm not growing anymore. I'm afraid of my children catch it from it. I don't want them to endure (there is worse, but yet) what I'm enduring. I don't want them to see in hospital, staying there for days, or seeing doctors every month, or complaining or even hurting. For a parent it's not easy to see that.
LucksterMFerPeepNCo 1 month ago
i live with NF had one remoived from sipnalcord T1-T3 doc said be for surgary i would never walk agin but with gods will iam still walking and holding down a full time job (that was back in 01) and 2 surgery same spot in 07 and still moiving my youngest has 10 of the cafe-au-lait spots but said thing is i never knew what i had intell i was 30 hadthe tumers since i as 12 finaly found a doc who knew wat she was doing
powerbullet25 7 months ago
lynzee i was also born with nf1 i have the spots and some nerofibromas but nothing serious. i was the first in my fam to have it im 23 and i have two baby girls im nots ure if they have it yet i hope they dont.
whiterabbitconley 9 months ago
I hane nf but dont remember which kind , I dont have the growths, but do have the spots.
stevenwayneowen 1 year ago
i have nf1 and i have to go to hosptial on the 1st for therpy i hate it my mum died of it
kirstyrand1 1 year ago
i have NF1
WOLFNBEAST 1 year ago
o God heal us,its so difficult to accept this condition especially when you see people around with good health,its only you who have the ans to this cure.please tommorow will too late heal us now pls GOD
ml09abg 1 year ago
Great video! I have NF1.
MrTheWitt 1 year ago
i have nf1 i used to get mri's once every year to check for tumors in my brain but now its evry two years and this year i have to get one. i just hope they can find a cure soon because u can get cancer from it, theres a 50% chance of a child to have learning disabilities when born and more. all we can do is pray
manofwonder555 2 years ago