Infantile Spasm
Uploader Comments (kubala98)
All Comments (31)
-
soo what happens? it look likes his mucsels are contracting then releasing?
-
@kubala98 I'm so glad to hear he's doing better and has a bright future!
-
Does he have these everyday all day? My daughter is 4 months old and is displaying similar body actions but hers last longer and she goes so red in the face & both eegs have come back normal. Thanks
-
It's terrible seeing him so upset. Do the spams cause him physical pain?
-
Oh poor baby. God bless you all.
-
I dont mean this in a rude way at all, but will he be handicapped as he gets older? or will this affect him during his school life? Just curius..
-
I dont know how I got here, but regardless of what your little boy has, he is absolutely gorgeous, I hope and Im sure he will have a wonderful fulfilled life, Jah bless little one!
-
I really cried lots i saw different videos but i couldnt hold my tears god bess ur son
We don't know how he will be affected long term. He is now almost 3 and does have a speech delay. He was walk and talk, but still only speaks 1-2 words at a time. Some kids who have IS never learn to walk or talk, others go on to lead totally normal lives. Jack will start developmental pre-school soon to hopefully help him catch up and go into a normal kindergarten class when he turns 6.
kubala98 1 week ago
yours is as bad is my sons.. How long did it take for u to find out its infantile spasms
nicolettemcr1 2 years ago
It took a while for the Pedi to believe me that something was going on, that's why I kept video taping. I think it was a total of about 3 weeks before he was diagnosed and another week before treatment started to work.
kubala98 2 years ago