FMS Awareness - The Personal Side of Living With Fibromyalgia

This is a video about my personal journey with Fibromyalgia Syndrome or FMS. Fibromyalgia is often misunderstood. Most Fibromyalgia sufferers wait years before they get the proper diagnosis. In making this video I hope to people with Fibromyalgia, loved ones of Fibromyalgia patients, and those who would like to learn more about this life altering condition.

To learn more about Fibromyalgia and to get support go to http://chronicfatigue.about.com/ and read Adrienne Dellwo's great blogs.

Other places to get support include Facebook groups, Fibrotalk message boards at http://www.fibrotalk.com/forum/, and http://www.butyoudontlooksick.com/boards/, an excellent and supportive site on invisible illnesses.

To learn more about Fibromyalgia visit the National Fibromyalgia Association at www.fmaware.org or The Fibromyalgia Network at www.fmaware.org.

Remember you are not alone in this journey.

Category:

Nonprofits & Activism

Tags:

• FMS
• fibromyalgia
• fibromyalgia syndrome
• educational
• educational video
• fibromyalgia education
• patient education
• chronic pain
• debilitating pain
• fibromyaglia sufferers
• awareness
• disability
• CNS
• central nervous system
• May
• Ehlers-Danlos
• chronic fatigue
• ME/CFS
• CFS
• fatigue
• personal story
• struggle

[fibromyalgiahell]

I was the same way, I was diagnosed with fibro 2 yrs ago and fought that diagnoses because they also found a spinal injury, but after all the treatments for the spinal injury failed I had no choice but face the fibro and deal with it. Once they started treating the fibro, I started to notice a difference in the way I feel. Fibro is very real and painful. It's UGLY and with no cause nor cure it's very frustrating, so all we can do is pray for more research and awareness.

[OzarksUSA]

@fibromyalgiahell I'm glad that your fibro treatments are bringing you some relief.

[artbydevon7273]

Hi,I also have Fibromyalgia.I really enjoyed your video and plan on watching your others.II have actually lost friends because I couldn't keep up with them and do all the things I used to do.It really hurts to find out some were really never your friends.It does help to hear someone talk who has Fibromyalgia,You can relate to that person knowing they are experiencing what you are going through.They know how you really feel.I hope you don't mind that I subscribed to you and wish you the best.

[OzarksUSA]

@artbydevon7273 Thank you for subscribing! I've only met 2 people in person who had fibro. The internet has helped me meet a lot of people with fibro and I don't feel so alone knowing that my friends are there online.

[HurtingInPain]

I feel so terribly alone living with this thing.

[OzarksUSA]

@HurtingInPain I understand. I don't get to leave the house often so I really do understand feeling alone. Take care.

[Sexiyeux23]

I have been in pain most of my life and the doctors dont believe me so i just live life in pain and i would like to know what i can do to make the doctors believe me.....my skin hurts and my muscles sieze  i have constant shaking, doctors roll their eyes at me and tell me to exersize but how can i if it causes more pain also being a parent of 3 children make it hard on me cause i feel i cant keep up with them or do enough for them...

[vwick77]

Great video and thanks for posting ! I also have Fibromyalgia. Was diagnosed 3 years ago when I was 30, but as you, I had severe pain in my legs as a child and asked my parents also why was I in so much pain. My mother then didn't even know what could be wrong. I feel alone with this illness also seeing that there aren't any support groups where I am from. I am hoping to start up some type of group :) Best of luck to you and thanks for spreading awareness !

Valarie

[muacertification]

Sorry to hear about your situation.

Have you ever considered the MUA procedure?

[tamra1975]

@tiredofbeingsick I am newly diagnosed. I am just now getting to the point where I am walking more. Sometimes, I really need help. I went for 3 weeks without a flareup and then boom out of nowhere I was stuck in the bed for 3 days. Sometimes, my skin burns and I will scream when I am touched. Other days, I am fine. I took up bird keeping and went back to my old hobby that I gave up long ago and that is photography.

[tamra1975]

@tiredofbeingsick I am also newly diagnosed. I just had a recent flare up and I have not been able to eat for days now. I am on Effexor and Flexeril. Sometimes my skin hurts so much I scream when I am touched. I get so angry because it usually happens when I have something planned and its so difficult for my family to understand why I always have to cancel plans always.