Real progress in ME/CFS research (part 1 of 2)

Donations to the Whittemore Peterson Institute is a great idea ! If every FM/CFS patient gave $1., that's $11,000,000. Let's donate ! New retrovirus seems important, but I have typical CFS ( Dx expert) with immune anomalies and chronic inflammation that absolutely began with a spinal cord injury - stretching of my spinal cord. My son developed CFS after Epstein-Barr - age 4/1985. It seems we must understand family risk factors. My family: spina bifida occulta, scoliosis, other congenital things

This is very encouraging news. I hope there is more discussion about myelopathies (spinal cord disorders) as an ultimate cause of chronic fatigue. There are many MRI negative myelopathies, and no one seems to get evaluated for them ? It is well appreciated by experts that many SCI patients experience deficits in immune function, and develop a chronic inflammatory state after spinal injury. SCI research has shown that natural killer cell counts and function are reduced after SCI.

I think it`s very important that every ME/CFS sufferers, relatives and friends donate some money for this institute. $ 5 - 10 is not that much! (or $ 50 - 100)

Just google for "Whittemore Peterson Institute". You will find it! :-)

WPI is our HOPE!

The Norwegian Arbeiderparti (akin to the UK Labour party) have today announced their new politics and "the change" of direction within medicine and particularly for ME sufferers: (from the Arbeiderpariet national partymeetings of 21. April 2009)

Thank you so much for posting this. Here in the UK we continue to have our devastating neurological illness viewed as psychological (with all government research funding going to psychiatrist), and look with hope to the Whittmore Peterson Insitute to prove that it is not.

This is great news for us with ME. I hope everyone donates some money to the WPI. There is help to selfhelp!