Julianna Grace's Cranio Journey

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Uploaded by on Jul 26, 2008

This is our journey through Craniosynostosis and the Cranial Vault Reconstruction (CVR) surgery that our daughter had at 8 moths old.

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  • gorgeous girl

  • @sirdcac I am a worried mom.. they are thinking my son (who is now 2) has sagittal synostosis. I was hoping to get information on it and if you give me your email address I will email you pics of my son

  • this is a very beautiful video! my nephew has to do that too. and when i saw this video it made me cry so much! well i hope your daughter is doing fine! god bless her♥♥

  • Oh Becca, this just brings it all back to me, hope little Julianna is doing well, Chloe xxx

  • !!so amazing!!!!today is your birthday you are so beautiful!!in about 2 weeks my baby going to have same surgery so worry!!!!!!

  • thanks i will happy if you send to me your email address

  • You have a very beautiful girl there. I love the first song, who is the singer and name of the song. Seeing the post operation pictures brings back memories when my kids had their operations. I hope and pray for the best for your daughter.

  • WOW one out of every 2000. Back in 1973 it was one in 100,000.

  • Hi,

    I have or had craniosynostosis. I had my operation at 13 and I am 41 now. Both of my kids have it as well. My son now 18 had his operation at 3 months. My daughter had to have two operations at 5 months and 3 years of age.

    If you have questions I will be happy to answer them.. Replay to this message and I will give you my email address

  • juliana is a beutiful babygirl i am crying in this moment because my babygirl she is 7 month old and she has craniosynostosis too i feel sad a i have a lot of questions to god she will have the same surgery of juliana so soom i hope god everything will be fine god bless all the kids and the parents with this condition>>

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