Arnold-Chiari Malformation

I made this video about my disease. I'm not too creative but hope you like it!

Songs:

Enya - Tea House Moon
Enya - A Day Without Rain

Arnold-Chiari Szindróma:

A veleszületett betegség során a kisagy egyes részei megnövekedhetnek és a gerincvelő koponyából való kilépésének a helyén elzárhatják az agyvíz áramlásának útját. Megfigyelhetők az agy más részein is elváltozások. A panaszok a koponyában kialakuló nyomásfokozódás miatt alakulnak ki.
A kiváltó ok ismeretlen, de feltételezhetők öröklődési és környezeti tényezők a betegség kialakulásában.
A betegség panaszai jelentkezhetnek már újszülött korban, amikor az elváltozás miatt vízfejűség alakulhat ki. A gyermek sírása gyengébb, nehezen vesz levegőt; végtagmozgási rendellenességek, bénulások lépnek fel nála. A serdülőkorban jelentkező tünetek általában a visszatérő fejfájás, a nyaki fájdalom és az izommerevség. A panaszok gyakran jelentkeznek együtt a gerinccsatorna záródási rendellenességekkel.

Arnold-Chiari Malformation:

Arnold-Chiari malformation, sometimes referred to as Chiari II malformation or ACM, is a congenital malformation of the brain.
Arnold-Chiari Malformation (Chiari II malformation) occurs in almost all children born with both spina bifida and hydrocephalus. The Austrian pathologist Hans Chiari in the late 1800s described seemingly related anomalies of the hindbrain, the so called Chiari malformations I, II and III. Later, other investigators added a fourth (Chiari IV) malformation. The scale of severity is rated I - IV, with IV being the most severe.
Chiari is often associated with major headaches, sometimes mistaken as migraines. Chiari headaches usually include intense throbbing in the back of the head. Chiari also includes extreme muscle soreness and low energy levels. It also can cause a hoarseness in the voice.

Category:

People & Blogs

Tags:

• Arnold
• Chiari
• Malformation
• Hans
• Pathologist
• Cerebellum
• Headache
• Szindróma
• Betegség
• Rendellenesség
• Kisagy
• Fejfájás

[Badr027]

SzChristie, how are you now? Have you gone in for surgery to correct this malformation? My cousin recently underwent surgery for this and he was doing fine and was also discharged from the hospital. But unfortunately on the way home he stopped breathing and was taken to the ICU. Died a night after that..doctors were surprised too...we are all very sad for him...died young at 22. I wish you all good health and long life. Peace.

[SzChristie]

@Badr027 Oh, I am so sorry for your cousin, dear! Yes, he was too young :( I didn't have surgery, because I don't need it. I was born with oxygen deficiency and then my parents dealt with me a lot, we did exercises and I grew up like the children at my age. Now I don't have too much symptoms, only headaches and hand trembling.

[Wiggyify]

so what are the symptoms of this condition?! we still havent taken it in med school, but it sounds so interesting!

[SzChristie]

@Wiggyify ACM's symptoms are, for example: headache, tinnitus (ringing in the ears), dizziness and vertigo, facial pain, dysphagia, muscle weakness, sleep apnea... But it depends on the type of this disease. I have type 1, so I have frequent headache, and my hands tremble many times.

[Wiggyify]

@SzChristie

thank you , that was REALLY useful. i'm assming as well that it sometimes produces difficulty in breathing right? how about palpitations ( irregular heart beats?)

much appreciated :)

[SzChristie]

@Wiggyify You're very welcome! Yes, I think difficulty in breathing is one of it symptoms. I don't know about irregular heart beats, my heart beats normally. I am sure, you will be much cleverer if you check out it on Wikipedia. ;-)

[rozia50]

there are several on FB groups from the uk and tey could help you

[bingofioul]

does any european have a surgery for this ? i need to know where my wife can have a "safe" surgery....

[idahopaula]

Thank-you for sharing your video. I am disabled at the age of 53 years from a Basal Skull Fracture and severe concussion. I slipped on the ice here in North Idaho on January 5th, 2008. I had a 6 inch break to my cerebullum and concussion. And, 6 months later another bad concussion followed from a fall. Today, I am 57 and very disabled with headaches everyday, lost 50% of my hearing, eye problems, Vertigo, etc. I can identify with you as I have pressure also on my brain. God Bless You.

[Tatuks]

I have chiari and had a surgery couple of years ago, first MRI showed significant pressure decrease in me spinal cord. Now I'm waiting for follow up check to see if I'm ok or if I need a new surgery.

I have a slight pain in my left arm and decreased sense of touch in the left side of my body. Have to eat painkillers and some sort of anti-depressants for chronic pain.

[smunnal]

i have chiari 1 and have had decompression surgery lumbar drains you name it. im so glad you made this video to help heighten awareness!

[diaamahdi]

thank you it's really help me

thank you again

[TheRayDoc]

I think you did a fabulous job and I am a Radiologist!

Good luck with your health. G-d Bless.

[FromDarkness100]

maybe i have chiari, if i do have it so it will be my diagnostician, and i not even a doctor, but i got to do one test before i really said it. i will do it.... it will be amazing if i'm right when anyone else was right.

[Badr027]

@SzChristie Thanks for the reply. I'm glad to hear you're doing better now. Wish you all the best in life and good health :)



[paranormalmind37]

Thanks for making this video. I was just diagnosed with chiari about a week ago and every medical report couldn't put it in simplest form... This really helped me have a better understanding of the condition.