A Craniosynostosis Journey
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Uploaded by Craniomommy on Nov 18, 2009
My little girl's journey through craniosynostosis. This video is to help spread awareness and support for any parents, grandparents, friends, or family that find themselves sharing in this very emotional journey.
- 17 likes, 0 dislikes
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@cranioangel one year post-op*
cranioangel 1 month ago
love your video!! my daughter (irene 2 yrs old) will be post-op from her first out of 2 surgeries this Feb 22. I also want to make a video on her journey with craniosynostosis but have no idea where to start or how to even make a video... just browsing and picking up some ideas.
god bless your beautiful daughter! :)
cranioangel 1 month ago
glad that your daughter made it!
imreallyjin 2 months ago
Thank you for posting this, my Grand daughter had surgery a year ago, and also has bacterial meningitis at aged 3 months, she is as bright as a button now - aged 2 and a half.
Her Mummy is an amazing lady, a single parent aged 19 when Maddie was born, and she has coped so weel.
Proud of them both.
Your daughter is beautiful. x
catgail35 3 months ago
my son suffers from craniosynostosis as well and at birth was mis-diagnosed with 'swelling'. he is undergoing surgery in a week. best wishes to you and your family<3
ashnicoleeeex0 10 months ago
@Dardasiet I was born the same way. And I was born in 1991. :) I thought I was the only one until I started looking it up. Screws and wires, and bone clay. Yupp I wear my scar proud :). It is good to know I am not alone.
God is good. :)
pixychic91 1 year ago
Thank you for this wonderful vid! I was born in 1991 and was also diagnosed with craniosynostosis. They didn't have the DOC-bands yet back then i believe cause i've never gotten one. tiny screws and small plates shaped my head. Its nice to see that i'm not the only one with a scar from ear to ear. And your daughter turned out absolutely beautiful^^
Dardasiet 1 year ago
she is absolutly adorable :)
ASDogGeek 1 year ago
XOXOXO
groovysherrie65 1 year ago
She is such a beautiful little girl. My grandson was born Nov. 8th and he has this. He goes to see a Neurosurgeon Jan 4th to see what will be done.
pamnkidz 1 year ago