HemiFacialSpasm before & after

Hemifacial spasm night before sugery and spasm free after surgery.

Category:

Education

Tags:

• Hemifacial
• spasm

[TheFritzkitty]

I hope all of you find relief in this soon, as I understand how maddening and life crushing having hemifacial spasm is. It completely alters your life.

The hemifacial spasm association is a very good resource in researching surgeons and reading about people and their experiences with the surgery.

My very best to all you out there who are suffering with hemifacial spasm.

[TheFritzkitty]

I am so glad you all have come across my video and that I can share my experience to hopefully provide hope for people and empathize with your pain in this. It is incredibly debilitating and if you are not experiencing it, no one really understands just how debilitating it really is. My surgery was a huge success, I didn't lose my hearing in the ear that was affected, and I had no other problems what so ever.

[TheFritzkitty]

I do believe it is stress induced, by maybe causing the blood pressure to rise so high in moments of extreme stress that it maybe somehow causes the artery to expand into the facial nerve and their is probably a genetic component to the anatomy of individuals who experience this. But there is really no full understanding why this occurs and I am told it is genetic.

[TheFritzkitty]

As a result, I could not sleep for more than three or two hours at a time. I was also going to school for my premeds and I would get sick from trying to read with it and the stress it caused just made my anxiety shoot through the roof. Mine started when I had a doctor botch up my ACL reconstruction and had to do two more surgeries to correct the first one. And I was a dancer and had lost her identity, and the day after I heard I had to do a third knee surgery, the spasm started.

[TheFritzkitty]

I completely empathize with all of you out there with this. I understand completely how debilitating this is. It completely go in the way of my social life, because I couldn't talk or eat in public without my face going off. I had to quit work, hide from people, and became a recluse pretty much and went into a very deep depression as a result of having hemifacial spasm undiagnosed for three years. I could feel every spasm and hear every spasm because it pulled on my eardrum.

[TheFritzkitty]

I did have one complication after the surgery. My body rejected the bone plug and I had to go in two weeks later to have another surgery because they thought it had gotten infected. I was lucky there was no infection, but I have a hole in my head, but I don't care and it won't be a problem. Just know that surgery will have its complications no matter what, don't expect perfection.

[myspeciallady1964]

Thanks so much for the information it has been helpful. I understand that not all cases are the same and have the same effect,, but that is the chance if we have to take and hope for the best out come.

[TheFritzkitty]

I researched surgeons for the MVD procedure for four months. I chose Dr. John Alksne at UCSD. He helped invent the MVD procedure with Dr. Janetta in Pittsburgh. I chose Dr. Alksne because of who he was and how many he has done(hundreds) and specializes in this and based on location. You want someone who has done 100s of these. My recovery was amazing, no side effects and problems at all, and I give the credit to the surgeon's skill and his detailed care and the care I received at UCSD.

[TheFritzkitty]

The only thing that I have been told to correct hemifacial spasm is the MicroVascular Decompression(MVD) procedure through brain surgery. I still have residual spasms, but they come and they go in bouts and nothing like it was before. I still consider my surgery a huge success and it is 150% better than it was. No one really notices my spasm anymore and neither do I. Not every surgery is going to be the same b/c we are all anatomically different and depends on the skill of the surgeon.

[myspeciallady1964]

Hello, I'm 47 years old and I started with the facial spasms back in 2006 after the death of my parents, I have been under going treatment trying every mediction out there and I still have the spasms, I have the same exact problem as you and it gets in the way of my social life, Could you give me the name of the Doctor that did the operation on you I would like to see if there is someting he could do for me. thanks so much for this video.