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Things that have helped my Ehlers Danlos Syndrome

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Uploaded by on Jul 18, 2009

I have completed hand therapy, and have other things that have helped make my life with Ehlers Danlos much easier to deal with on a daily basis. I also want to share some important features and symptoms of Ehlers Danlos Syndrome type 3 (hypermobile type).

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  • @MuslimBrezz dude seriously id like to how you handle it! it effing hurts everyday! the only reason im still able to move is because i walk and i have the tea!

  • @Takoda666 Tracie can't evensuck a cock now

  • @HunkerInTheBunker rockerchik76 died RIP.

  • My 11 yr old daughter has EDS type 3 - her major complaint is leg/ankle pain. She has to use a wheel chair when we have to walk long distances. We live in Michigan and are looking for someone experienced in treating EDS... do you know where I can find a good doctor in Michigan for her?

  • I'm 17 I've had ehlers danlos my whole life and never known it. I would fall all the time as a kid and my ankles would hurt so bad. Its only recently that the pain got much worse and spread throughout my whole body. My legs and chest are the worse and sometimes my limbs go numb. But my dad found this tea that really helps and it reduces the pain a lot its called horsetail tea. For those who want the little help I can offer.

  • rockerchik76, hope hubby makes you a nice cumnog for the holidays.

  • I have the same fingers as you!! I'm super hypermobile, only thing that helps me is narcotics which I need to take a ton of since I'm becoming tolerant. I don't personally know anyone like me, so thank you for posting this!

  • @mystery8881 yes, because i have type 3 and i have never had a full blown dislocation, but my knee pops out (so it's just loose within the socket, instead of being a snug fit likes it's suppose to be), and it happened to my hip once in my sleep. i have slightly stretchy skin, but nothing too abnormal. i also have the racing heart and i always feels weak and tired.

  • Very good video. I was just recently diagnosed and we both have very similar circumstances with our mother. I am in so much pain and feel like i am holding myself constantly together. Im falling apart and have no suport. I would love some people with the disease to speak to. God bless Lindsey

  • Can you still have EDS without having stretchy skin and being hypermobile all over? I have fibromyalgia but now that I think about it I have this feeling of some "loose, popping joints"... plus I have some heart issues such as a racing heart and a general feeling of weakness.

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