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"Post" Son On Rare Syndrome

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Uploaded by on Apr 17, 2009

Son of writer Sally Quinn and former Washington Post editor Ben Bradlee, Quinn Bradlee discuss his new book "A Different Lie," which chronicles the author's struggles with velo-cardio-facial syndrome.

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News & Politics

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  • I hate the 30 second commercials...:/

  • @faithoffaith Not me-The only problem I got from VCFS is attention deficit disorder and some adhd.

  • My husband doesn't have the hypernasal speeh, but my daughter does. I

  • Does everyone with VCFS have hypernasal speech? I know that signs vary though

  • Just read Quinn's book. It's very informative about VCFS, about which I'd previously known nothing. It is also a beautiful testament to his courage, perseverance, good nature and enormous love for his family and friends. Bravo:) --

  • that is a great video my son has vcfs he is two

  • I wish more adults with VCFS would speak out to inform the public. All we can do is equip ourselves with the knowledge to help the youth of the future. Thank you Quinn!

  • My husband & daughter have "VCFS" aka Digeorge Syndrome & 22q11.2 Deletion Syndrome. This is a microdeletion on the long arm(q) of the 22nd chromosome in the region 11.2. It's hard to understand for me and I deal with it every day...so many things go along with this syndrome...up to 180 features.

  • Hopefully one day there'll be so many people with rare disorders that "normies" will be the ones classified as different.

  • whoa this is a little weird sad though

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