Tetralogy of fallot (TOF)

this is a vid that says what TOF is. it is a CHD (child heart defect)that is present at birth in children. I was born with this defects and know that there are many things that go with it that are not on this vid!!

Category:

People & Blogs

Tags:

• CHD
• heart
• defects

[500gomez]

i also have TOF i am 21 years old had my first sx when i was 9 months and one when i was 8 yrs old. still waitting to see if i need another one. i have yearly check ups

[Fruitymonkey88]

500gomez,

Im 21 as well and have this. I had surgery at 6 months old as well then again at 2. i have to have another surgery in the next few years, before i have children as my chest caved when i was 2 and its to close to my heart. I as well have yearly check-ups.

[squirrelliz]

I have TOf, I had a shunt aged 2 and a total correction when I was nearly eleven...I'm fifty years old now and I have two healthy grown up kids and a long career in nursing. Not bad considering the severity of the problema nd the fact that this type of heart surgery was in it's infancy when I was born.

[Fruitymonkey88]

i no what you mean i had a shunt put in at 6 months old and my "full" repair at 2 and a half. i say "full" because i still have leak and need another surgery. When i had my surgery the girls still didnt survive it as often as the boys. it was still underdeveloped then. but now is WAY better

[AddiesMamma]

CHD stands for Congenital Heart Defect not Child Heart Defect, but you are right in the sense that it is present at birth. You are a warrior, congratulations on what you've done. Continue to fight and spread awareness.

[Fruitymonkey88]

I no what it means, i have known sense i was born. But really i rather call it child heart defect, as i have my hole life. When i talk to a person face to face i say Congenital. But so many words could be used inplace of the C. I just rather use Child because its something alot of children fight, and it sometimes gets easyer as you grow...not all the time but sometimes.

[girlfronkurdistan]

whos the singer?



[The555Shorty555]

I have a daughter who is now 2 but at 2 weeks old she had her first open heart surgery. Where a shunt was placed. And at 15 mouths old she had a 2nd open heart surgery for the repair. She has checkup's every 6 mouths For Now. And have been recently told she will be good till she is 6 to 7 years old. Reading these comments gives me a lot of hope. thx everyone

[saralikeskiwi]

I did not have TOF but another (rare!) CHD: mitral valve insufficiency. I had my first operation at 11 months and my second at 8 years of age. I am now 23 years old, in great health, and in my second year of medical school! I came to this video to better understand TOF while studying for exams. Congrats to all who have survived with TOF and still lead a pretty full life:)

[BunnyWonny]

Im a tof survivor =] 1994-2011 17 years and counting im so greatful im praying for all new tof babys love ya guys!

[In5ane956]

I am 22 now. I had my first sugery at 18 months and a second when i was 16. To all the parents who discovered their child has TOF my prays are with you guys.

[nibor0421]

my son was born with TOF and he had is sx when he was 10 weeks old and he may have another one but its nice that I can see that so many others have it, It reminds me that my son is not alone in this!!! thank you everyone!!!

[TheSpaceJanitor]

peace 2 all my TOF survivors.... how has this affected yall lives? i'm 32 and im about to go for an MRI soon.... supposedly there have been issues with leakage... anyone else experiencing this?

[Loadedmagsny]

Hey i have this iam 26 years old i had it when i was couple months old and my 3rd operation was when i was 5 yrs old sometimes i feel like i cant do nothing with my life cause of it but i do train in the gym and try to stay active job wise is a little rough for me to find. i hope there someone out there that can help me to give some advice on what i should do and what can i do with myself.. thank u..

[1986lukey]

Hi ,

My son has TOF and he is only 3 months old and he is having the operation at great ormand street and ive just heard theres a 5% chance he might not pull through is this the case???? Any advise would be great.... Luke.