I also have FA , and now i will try Idebenone in high dosage to see if there is any change in the behaviour of FA. And by the way, treatments for FA are available in US labs , but they don't make it public. Human frataxin is available for sale in US labs. As you know, in FA there is not enough frataxin produced by the mythocondria of our cells. May God touch the hearts of those who have the cure and keep it hidden from the people who need it...
I have FA too, but i've only had it for 3 years or so, I'm 14 and I was diagnosed with it when I was diagnosed with Crohns, I've been doing pretty good, the symptoms I have are that I get dizzy a lot and I stagger when I walk and my sister(who also has FA and Crohns)and I are doing a study in LA for FA right now.
hey im amanda im 20 and i have fa and it really started to hit me when i was 15. im in a wheelchair. i have been in my own place since i was 18. i have a fiancee and we have been together for 3 years. he helps me with anything but i do ALOT myself. dont let it get the best of u. i am not going to
I also have FA , and now i will try Idebenone in high dosage to see if there is any change in the behaviour of FA. And by the way, treatments for FA are available in US labs , but they don't make it public. Human frataxin is available for sale in US labs. As you know, in FA there is not enough frataxin produced by the mythocondria of our cells. May God touch the hearts of those who have the cure and keep it hidden from the people who need it...
ct89ccx 5 months ago
I wish you all the best. You are stronger than I with this friedreich ataxia.
MissAbsinth87 1 year ago
good video brings more attention to people with FA i have a friend who has FA and i have CMT or Charcoh-Marie-Tooth...
brittny92 2 years ago
I have FA too, but i've only had it for 3 years or so, I'm 14 and I was diagnosed with it when I was diagnosed with Crohns, I've been doing pretty good, the symptoms I have are that I get dizzy a lot and I stagger when I walk and my sister(who also has FA and Crohns)and I are doing a study in LA for FA right now.
missmage24 3 years ago
This video made me smile. I hope nothing but the best for you!
jhowell175 3 years ago
Awesome! This is SOOO cool! I know someone with problems similar to the ones Krystie has.
livinthislife312 3 years ago
Is this a true story or did you make it up?
hottie2honey 3 years ago
I love this video! It is so creative to do a story with paper dolls! I know someone with ataxia,and I know that they'd love this video!
hottie2honey 3 years ago
hey im amanda im 20 and i have fa and it really started to hit me when i was 15. im in a wheelchair. i have been in my own place since i was 18. i have a fiancee and we have been together for 3 years. he helps me with anything but i do ALOT myself. dont let it get the best of u. i am not going to
amandanronny121 4 years ago
nice vid, please use this talent that you have to post more vids( any subject doent matter)
I love you.
oscargurses 4 years ago