Chiari~Nicole's fight

My Daughter's fight with Arnold Chiari, Tethered Spinal Cord and Ehlers~Danlos syndrom. I am so proud of the way she pushes through her battles with a big beautiful smile. I also wanted to take the time to spread awareness about these disorders.

Category:

Education

Tags:

• acm;
• arnold
• chiari
• malformation;
• chiari;
• tethered
• cord;
• ehlers~danlos
• syndrom

[4mypreciousgirls]

Lostinpercition~

surgery does help if you have the right neurosergeon. I would highly recommend the Chiari Institute in New York. They know all the latest research on Chiari and EDS. They are an amazing group of doctors! Best of Luck and praying for pain free days in you future!

[4mypreciousgirls]

Thanks for your support everyone. It is support like this that gives us bursts of energy to keep fighting and puts a smile on Nicole's face. Thank you for watching her story and spreading chiari awareness! Hugs to all!!!

[CrACkaNation]

Chiari fixed. Scoliosis will be fixed soon! getting a brace and theres a good chance my curve will go down to a 15 degree curve or no curve at all. God Bless al that are affected by this malformation

[tehabwa]

i had chiari surgery about almost a year ago still in recovery dont know when i will be back 2 normal i stil have headaches have dizziness forgetfulness numbness some other things

[KelliUnderPressure]

What a touching video! I just cried through the whole thing. I was just detethered in NY on 11-16-10. It looks like you are doing a wonderful job, as a family, staying supportive and positive! :) Kelli Carter

[eabnjb1522]

my son has chiari i wish your daughters the best of luck!! they are in my prays to learn about my son his video is called nic's jounrey

[lostinperception]

Beautiful video! I have both Chiari and EDS and am currently debating surgery... would you say that surgery helps? I don't know what to do, thanks! I hope your daughter is well!

[vsawyer3]

Nicole your the best cousin anyone could ever have. I hope you find a way thorough this and feel better soon. - Vaughn III

[karigirl75]

Amazing Job on the video Lisa!!! My love and hugs go out to Miss Nicole, keep your chin high sweetie! i'll pray for a pain free day for you! Love always...Kari

[ebubbadoo]

This is absolutely awesome!!!!!! I am soooooo proud of you Nicole!!! You go Girl! Never Ever Give up!!! Luv Your Chiari,Tethered Cord,EDS Pal Erin - Awesome Lisa!!!You have an amazing family!!!! xo