Please Watch! One Congenital Heart Defects Story.

Congenital Heart Defects (CHD) are a lethal constellation of birth defects of the heart that affect millions of newborn infants and children worldwide; a killer that claims thousands of lives every year. Eight of every 1000 children born alive (0.8%) will have some form of congenital heart defect.

My husband story!

Category:

People & Blogs

Tags:

• CHD
• Heart
• OneTrueMedia
• d-TGA
• D-
• Transposition
• of
• the
• great
• vessels
• atrial
• septal
• defect
• Mustard
• procedure
• Pectus
• excavatum
• repair
• Awareness
• May
• 1965

[grybold]

It has been nine months since the last comment on this thread. How is your husband doing? What are his complications that are causing him to require a new heart? I have the mustard procedure myself. I was born in 1980 and I have been healthy my whole life (I've been told I am very lucky, and that most don't do as well). But now at age 29, I am beginning to develop arrhythmias (for the first time ever). It's scary. My cardiologist is referring me to other specialists now. Please message me

[pennyzeigler]

My husband is D-TGA. Thanks so much for commenting it really nice to talk to someone that has the mustard procedure done also.

[mamichristie]

Thank you For this Video My heart goes out to you ! God Bless you! We are trying to Spread Awareness I hope that many people get to see this !

[rebhoward]

I am sorry I made that interpretation from the video from what was said about his last wish. Thank you for correcting me on that. I hope that you, Michael and your daughter have many, many more years of happiness together. I am so relieved to know that he is still with you and your daughter. My prayers are with you always. I continue to spread awareness about CHD in our Angel Landon's memory, please continue to share your story as well.

Love and Prayers to you and your family always

[mylovesofmylife]

Wonderful that the little boy in this video with a CHD grew up to be a sweet man.

[tambone007]

i had the mustard procedure done when i was 6 weeks old in 1972.my parents were told i would be lucky to live through the surgery let alone to age 5 i'am now 39 yrs old have 2 great sons and a new granddaughter.i had no real problems growing up until after the kids were born.i'am now on my 3rd pacemaker and one day will need a heart transplant but everyday i wake up i thank the good lord for giving me more then my fair share of life.if u have faith and are strong u can overcome anything.

[tuntunkhanrocks]

I also Have Congenital heart defect. T_T

I had immidiate surgery right WHEN was BORN.

I am currently doing fine now though. god bless the people with this disease.

You are not alone.

[JessMsLovely]

@pennyzeigler i've had that same operation i am 22 now and have been doing ok. besides a few miner health issues.. I hope all is well with your husband.

[megodude]

Hello

I had mustard surgery in 1967 in LA CA

I was born in 1964 july 31.

the first pic in your video really hit home with the black and white photo.

I live in carson city ,NV now and am 46 years old and on pacemaker # 5

If you like to e mail me feel free at megodude@charter.net

If you still live in No Cal I sure would like to talk with an meet you

Hang in there

Kurt lepire

[jennylou67]

I also have TGV and have had the Mustard procedure done to correct the TGV. I was 13 months old when I had the surgery done. I was also the first survior at Henry Fords Hospital of Detroit,MI and 125th in the world to have it done-back when they still counted. when I was 32 ZI was told within 10 years i was lookimg at a heart transplant, am now 42 and still kickn' :). I have had a pacemaker put in in 89, replaced in 95 & 2006. I am in the beginning stages of CHF. and also have atrial flutter.

[dellpav]

aww im sooo srry =(

[mskristynrose]

im 20 years old i have the same thing and the mustard procedure i never got them switched .. i have a pacemaker now for 3 mnths

[babycasper121206]

Im very sorry to hear about that. My son was born with D-TGA in June of 2009 He had the arterial switch done. Which is different from the Mustard. I would love it if you could keep me informed on how your husband is doing.

[pennyzeigler]

Dont get me wronge but there no really support out there for familys that are possible face death every day. I just happy what time I have with my husband. Sorry to be so low today on my replay. I had a hard day!