3 year old with Arthrogryposis -Summer 2008

Alexis can not use hands or arms, nor can she bear weight to stand on her legs. She is working hard to do what she can.

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Education

Tags:

• arthrogryposis

[LisaAndLilyPro]

i am a 14 year old girl with arthrogryposis. it is very hard to deal with and sometimes im sad. your daughter is beatiful and full of life. and when shes older sit her down and tell her it may get hard but thats why she will have amazing friends behind her. i know that my friends sometimes forget that i even have it. she reminds me of when i was little. and dont dare let the doctors tell you, i wasnt supposed to walk, and i am. mever underestimate the strength of a child with courage

[julietajule]

@LisaAndLilyPro --- Thank you so very much for your sweetness...I would love to stay in touch with you and have her meet you someday...even through skype or something... please stay tuned with my channel... i will add things periodically. I just finished uploading her playing with her little "Go Fishing" game. She is definitely full of internal & emotional strength and will do anything if it concerns her health and well being. Take Care =)

[Americangirl787]

What a beautiful little girl. She must truly be an inspiration to you and your family. Did you know that she would have this condition before she was born? I read that she is having surgery so that she can live her dream to stand--if she believes she can do it she CAN. My husband broke his back and was told he may never walk again--with determination he can (but with the aid of braces and a cane). He is an incomplete paraplegic so he had to learn all over how to walk. God bless you all.

[julietajule]

Thank you =) She is an inspiration and our little angel. She was diagnosed at 26 weeks gestation. She has had two surgeries and has since healed. She goes to therapy twice a week and we work with her everyday. She loves kicking around in the pool and riding her tricycle. Her challenge for standing and walking will be much greater since she has never had the ability and she is not able to help herself because her arms are yet unable to help support her. Thank you & God Bless =)

[pstwkr69]

alexis is such a beautiful girl! the lady who said god doesn't give special babies to just anyone is definitely right. i want to add that god doesn't allow these babies to come into the world for no reason. remember, your daughter is right where she needs to be in this world. god truly does not make mistakes. we are all here to learn, and to learn from each other. however, our greatest knowledge is how to love. these special souls show us in the simplest of ways how easy that can be.

[julietajule]

I am so thankful that she fell into our life. She has made our family so much closer. She had surgery on her left hip on 3/19 and is scheduled for the right side. Hopefully she will fulfill her dream of standing one day. she is a determined little soul and we cherish her. Thank you for your sweet words.

[maratikg]

Hello, I'm currently working on my degree in Occupational Therapy and I was wondering if anyone could volunteer to answer some questions for the project that my class mate and I are working on. The diagnosis that we were assigned is arthrogryposis. The interview will be based on how the diagnosis/ijury affects the individual's daily life, the "lived experience". For those of you who are willing to participate in the interview please e-mail me at lana0627@gmail. Any help will be appreciated

[TenSai8D]

Lol the page is full of emotional S.As

[1DubstepAtAtime]

She is soo pretty!! I also was born with Arthrogryposis and I only have it with my left hand. I wasn't suppost to walk and I am now, and typing well. (: My friends sometimes forget also but they understand what it is and they give me courage. The doctor called me "Miracle Baby" and I have had many struggles like not being able to put my hair up, and watching my hair with only one hand and my right hand is the same but without the curve in the wrist. When she's older she'll love herself. I do(:

[sgvchinadoll5150]

your daughter is so very precious. my daughter too has arthrogryposis. and watching this video got me so emotional. they look so much alike. My daughter will be 11 this yr and is amazing. her arthrogryposis is affected on both arms and legs. her knees do not bend at all. shes had 4 surgeries. they are such wonderful children let me tell ya. my daughter is the best thing that happened to me. if you have any questions at all feel free to contact me. thank you.

[syrenfire1]

My daughter is 3.5 too and she also has Arthrogryposis. It only really affects her arms though. And her size. I am looking to see if other children with this tend to be as small and grow as slow as my daughter. she is 3.5 and about 21lbs. she was born 5lbs7oz.

your daughter is amazing and looks very happy:) 

[RapierWeasley]

What a sweet beautiful girl. She reminds of of my neice at that age. she toohas arthrogryposis. Now 17

[sase77]

I am a 25 year old female from Rhode Island with Arthrogryposis. It was very hard growing up with it because many kids didn't understand it. But I've grown to understand it more and so has my friends. Your daughter is such an inseration to me and she brings me joy! I'd love to keep in contact with you if possible. If you have an email you could share, that would be awesome. I can share my baby photos with you. I appreciate your daughter and videos! Thanks, Amanda

[jonasrockbaby16]

im fifteen and i have arthrogryposis and scoliosis my brother whoes 17 has it too. its really hard because you do get the fucked up people stearin at you.. n yeah it aint nice,, i mean who wants people lookin at them like their monsters.. people judge us before they know us.. doctors told us that callum wouldnt walk but he did!! your daughter is amazin, keep up the good work (: i would like it if people with this disability added me.. i dont know anyone with this except my brother

[eyecandie2004]

My niece was born with arthrogryposis a few weeks ago and we just found out today. What is the prognosis?