2008 Cystinosis Research Foundation
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Uploaded by Natalieswish on Aug 17, 2010
Due to the research efforts led by the Cystinosis Research Foundation, people with cystinosis will soon have a better life-saving medication, and for the first time a cure is within reach.
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hello there, how are you all doing. i want to introduce myself to you. i am jorijn, a female from the netherlands, 33 years ol with cystinosis. i had my transplant in 1989 and its still working. the biggest news for cystinosis patients is that my son is born in 2005. i hope to get to know a lot of patients with cystinosis, to give them information and hope. i am doing great. you can find me on facebook, if you want to know anything.
MsJorijn 1 year ago