Janet has Motor Neuron Disease which has taken away her voice, but not her mind! Determined to receive sufficent care and support she wrote a script explaining her position and we gave some young vounteers the task of bringing it to life. Enjoy.
Excellent educational tool. I am a student nurse and am doing a presentation on the loss of speech in MND and have found this inspiring and helpful to find out how to communicate with people living with MND
Thank you for that information, my aunt has motoneuron and the disease is progressing quickly so have been finding it difficult to know the appropriate course of action. I send my thoughts during this difficult time, once again thank you
Wonderful video. Very informative but also very reassuring. It has helped me a great deal to better understand the condition. Thank you. And what a gorgeous helper!
Thankyou for this helpful video. I found it very moving and objective. Sometimes when talking with non-verbal people you want to do what's best but don't know how. Now I see!
Thank you, Janet. Great instructional tool and inspirational as well!
samhale01 1 year ago
Excellent educational tool. I am a student nurse and am doing a presentation on the loss of speech in MND and have found this inspiring and helpful to find out how to communicate with people living with MND
cranky110 3 years ago
Thank you for that information, my aunt has motoneuron and the disease is progressing quickly so have been finding it difficult to know the appropriate course of action. I send my thoughts during this difficult time, once again thank you
vegepesto7 3 years ago
This about explains how most of the apparent "caring" is basically well-meaning self-serving.
I get tired, demoralised, dis-empowered and distressed during the long recovery periods to. Thanks for the words I couldn't touch.
Alexknobsob 3 years ago
Janet: Not only you are beautiful in a physically way but also spirituaslly, you're and angel!
Lots of love your way,
LuisM
Hoboken NJ USA
I've Progressive Multiple Sclerosis for over 20 years.
"We all are sliding down the sharp razor blade of life"
Sefardisafran 4 years ago
excellent video!!!! this reminds me about my dad... miss you daddy..
cha;-)
charmedilla 4 years ago
I was too moved.Thankyou for sharing
josepheze 4 years ago
What a wonderful video. I hope this is used as a teaching tool for carers.Janet, you're a star.
WanetaV 4 years ago
Wonderful video. Very informative but also very reassuring. It has helped me a great deal to better understand the condition. Thank you. And what a gorgeous helper!
esmelk 4 years ago
Thankyou for this helpful video. I found it very moving and objective. Sometimes when talking with non-verbal people you want to do what's best but don't know how. Now I see!
PavlovaQueen 4 years ago