Promoting Congenital Heart Defects Awareness
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Uploaded by zate75 on Feb 11, 2008
Congenital Heart Defects (CHD) are a lethal constellation of birth defects of the heart that affect millions of newborn infants and children worldwide; a killer that claims thousands of lives every year. Eight of every 1000 children born alive (0.8%) will have some form of congenital heart defect.
This video features our son and some facts around CHD to help raise awareness.
Please join us at http://www.bandofhearts.com for CHD Community support.
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Uploader Comments (zate75)
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All Comments (24)
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Hi there. I am 8 months pregant and base on the babys ultrasound, our precious one has CHD- and its the TA - Truncus Arteriosus. I am so scared and hoping for a miracle. I need some advice.
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I was born with chd, and had to go through a surgery right when i was born. Thats how serious my case was T_T
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my baby alexis born with CHD and her case was ALCAPA "anomalous left coronary artery from the pulmonary artery" she undergo an open surgery and stayed at d hospital for 3months...she was a miracle baby..we were so blessed that GOD let her stay with us..and now she's turning 3 ds august..
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I was born with 2 aortic heart valves or flaps...Your sopposed to have 3. Im 16. My question is why me? 2% of people on earth are born with this heart defect that I have. But yeah....
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thank you!
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my son too has chd, he has gone thru 2 surgeries and 3 in next couple of months thanks for making this video. god bless ur family and that precious lil boy
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Lovely video! Trevor is adorable. I will be 23 years old in two weeks and I have Truncus Arteriosus and repaired ASD & VSD. I've gone through 4 open heart sugeries (currently waiting for the 5th one) plus a couple of angioplasties. But I've been able to live a near normal life so far. Don't hesitate to contact me. ^^
3 years ago 2
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My son was born with TGA and he had open heart surgery at 5 days old. He is now 19 months old and doing great, but another OHS may be in his future.
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Trevor is so cute! I was born in 89 with tricuspid atresia. Ive had an open heart surgery and am about to have my second one next thursday. i hope your family does well!
goffer49 2 years ago
I really hope your surgery goes well. Good luck.
zate75 2 years ago
My daughter, Adelle, had HLHS. When she was first diagnosed in utero the doctors thought she had truncus arteriousis on top of Single atrium, Single ventricle. Does your son have any chromosomal abnormalities?
AddiesMamma 3 years ago
No we were very lucky, he was tested negative for DiGeorge Syndrome.
zate75 3 years ago