i'm 19, live in germany and i have Goldenhar Syndrome too my sort of syndrome doesn't attack the ear ... it attacks my left eye my nose and my uvula i got that distractor head thing 7 years ago that changed my life also but now i have everyday headache ... <-- and i'm not a woman =) gee ... no excuses for me ^^ just GO ON HEAD UP and GO YOUR WAY!
lm 38 yrs. old. and l have this syndrome too it's been hard my self-esteem is always been low because of it.
lumoon09 4 months ago
TheRyeTime 6 months ago
wow, i have GoldenHar Syndrome and i had the same op in the same hospital 2 years ago. Changed my life!
000stace000 8 months ago