guillain barre syndrome

My name is Devesh i suffered with guillain barre syndrome on jan 8 2010 adminted in hospital for 12 days from jan 16 now i am under rehabilitation to regain my lost muscle in both hands and legs it will take 6 mounths as for my physio doctor .
What is Guillain-Barré Syndrome?
Guillain-Barré syndrome is a disorder in which the body's immune system attacks part of the peripheral nervous system. The first symptoms of this disorder include varying degrees of weakness or tingling sensations in the legs. In many instances, the weakness and abnormal sensations spread to the arms and upper body. These symptoms can increase in intensity until the muscles cannot be used at all and the patient is almost totally paralyzed. In these cases, the disorder is life-threatening and is considered a medical emergency. The patient is often put on a respirator to assist with breathing. Most patients, however, recover from even the most severe cases of Guillain-Barré syndrome, although some continue to have some degree of weakness. Guillain-Barré syndrome is rare. Usually Guillain-Barré occurs a few days or weeks after the patient has had symptoms of a respiratory or gastrointestinal viral infection. Occasionally, surgery or vaccinations will trigger the syndrome. The disorder can develop over the course of hours or days, or it may take up to 3 to 4 weeks. No one yet knows why Guillain-Barré strikes some people and not others or what sets the disease in motion. What scientists do know is that the body's immune system begins to attack the body itself, causing what is known as an autoimmune disease. Guillain-Barré is called a syndrome rather than a disease because it is not clear that a specific disease-causing agent is involved. Reflexes such as knee jerks are usually lost. Because the signals traveling along the nerve are slower, a nerve conduction velocity (NCV) test can give a doctor clues to aid the diagnosis. The cerebrospinal fluid that bathes the spinal cord and brain contains more protein than usual, so a physician may decide to perform a spinal tap.
http://www.medicinenet.com/multiple_sclerosis_pictures_slideshow/article.htm

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• guillain
• barre
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• deveshrshah

[deveshrshah]

Hello sir. first how old is your friend, and what treatment is under going now. do i have any video of that. for me its almost now 2 years . i am not 100 % cure but yes i am doing my normal life routine very well. 100 % is very rare to cover . i say i am now 80 % cured . but this GBS come fast and recovery is very slow. but it will recover for sure

[DirtyCrossMX]

I had the same.I was 7 weeks in the hospital and i was 7months under rehabilitation. (28.07.2008)

[deveshrshah]

@DirtyCrossMX SO how you are doing now. i am very much back to normal not 100 % but doing my normal life good. but every day i had muscles craps on my both legs. that hurt me lot i dont know what to do. i daily go for swim that help me a lot to get back. i will upload me new video soon.

[deveshrshah]

you can see the detail of that in the link of website what i have given in detail below my video . you have to scroll to open that and click

Website name medicinenet

[superbig594]

my nephew also suffered with guillain barre syndrome he was only 2 yrs old.........:((

pls pray for d immediate recovery of my nephew Sean thank you very much....

[joetherex]

@baesa1986 Hi this is Joe... i was stuck with GBS on 21 Dec 2010..i was in ICU for a month and Ventilator for 14 days and i was treated with IVIG for 7 days..After spending a span of 85 days in hospital i went home. After that i started my physiotherapy n rehabilitation and started to improve a lot.. i joined back office in July and i can say i recovered almost 80% from a complete paralysis stage.. now i can walk with the support of crutches and hoping to walk on my own soon...

[MrClaudekassouf]

My friend has gbs he stayed in hospita about 2month but he got it verry bad it destroid his nerve system in 24 hour he cant move any thing exepet his nick verry difical and now its bean about 6 month and no change yet

[baesa1986]

Let's all be strong...it is only us who can help ourselves...I just got released last Sept. 18, 2011 from a 5 days stay at the hospital. I was given IVIg. I can walk slowly, better with a walker, my hands are weak. I accepted the fact that this is a long recovery period so I guess my advise to anyone who has this is to be strong and don't feel sorry for having thi condition. We will recover...k guys....

[edtuomy]

@bh1529 i had my GBS attack at the end of March this year. I can get around pretty well after 1 week in hospital and four weeks in rehab. I can walk but not jump or run.

Some nerves in my hands and arms are the slowest to heal. Still, I feel that I have been very lucky. I cannot imagine going through it again.

[mipacs]

tambem passei por isso e sei o quanto é dificel qualquer esforço muscular... Amigo vc vai ficar bom ! boa sorte !!!

[DirtyCrossMX]

@deveshrshah

I’m also not normal 100%. I have still some problems,because I can’t move my foot like before. But I ride a bike,I swim and I must say,it is going to be better.

Also I don’t feel much in my right leg,because because not all nerves are completely healed

P.s. Sorry for my bad English^^ I'm from Italy,so I speak more German and Italian.