Freddie at PACE.mov
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Uploaded by thepacecentre on Mar 22, 2010
Freddie is a bright, happy, vivacious and loving little boy whose bravery in the face of adversity overwhelms all.
Despite all of this, life for Freddie is not without its challenges and difficulties. As a result of his condition (congenital bilateral perisylvian polymicrogyria) Freddie has global developmental delay and intractable epilepsy. His poor gross and fine motor skills make simple tasks such as sitting, walking, independent movement, using his hands etc extremely hard for him and he is dependent upon others for all his needs.
Freddie attends the PACE Centre in Buckinghamshire UK three days a week. PACE's principles of teaching are based upon the foundations of Conductive Education. This repetitive, holistic, trans-disciplinary approach is so effective in dealing with Freddies problems and this has made a tremendous difference in him and how he has developed as a result. Freddie receives a tailor-made programme delivered by specialist staff who provide learning for life through the intense and integrated therapy.
Since beginning at PACE in 2006 (at the Parent and Child Group, where parents are also taught best practice at home) he has learnt how to take some steps (with facilitation) pedal a trike a short distance, make choices through eye pointing and vocalisation and use a potty and his huge sensory processing problems are constantly monitored and addressed. As a consequence he has become a more independent, outgoing and content little boy with the dignity to be more in control of his life.
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@Jennifermom1028 Freddie's mum Suzannah would like to contact you and visit your Facebook page, can you message her on suzannahgoodchild@hotmail.com please.
best wishes from the PACE Centre. Simon
thepacecentre 2 months ago
My Baby girl born on10.28.11 was diagnosed nine days later with PMG Bilateral Frontparietal. Jennifer was a full term Baby. She was very small 19" & 5.12lb (8%), her head 31cm (3%)was even smaller in comparison to the rest of her body. Her arms and legs seemed stiff and I was not able to open her fists. Feeding was impossible and after three days I requestet to have a feeding tube placed. I started a Support group on facebook and would love for all of you to join. God bless you!
Jennifermom1028 2 months ago