Fibromyalgia Hell, We are not allowed to Grieve The Death of Our Life

All Illness or Disease patients are allowed to GRIEVE!
Breast Cancer is Horrible, They Receive SUPPORT
From All,

Category:

Nonprofits & Activism

Tags:

• Fibromyalgia pain
• Death
• Grieve

[lineblack2]

I been wanting to vlog since youtube has been around. I just keep saying once I look better, once I feel better and so on. Now I know I will never look normal again (that is from crohns and colitis not the fms) and I will never feel well again (THAT is fms) you have made me for sure decide to. I always have blogged but its harder to write them and more and more ppl dont want to read, they want to watch. Thank you for the courage. Hope to be beside you soon :)

[mcertonio]

@lineblack2 DO NOT WORRY ABOUT PEOPLE! You will never get the RESPONSE You Want! I do this for me! I had no one talk to--So I did this and the response and people writing to me--HELPS ME-- I feel --I think-- I love-- i want to help!

[yolospat]

When my fibro was at it's worst (and my life, lost my best friend, my job, my husband, my house, my WORLD) I discovered ART. Not only did I surprise myself with art talent, but it was the most therapeutic action I could do at the moment while sleeping on the couch in my Mother's basement. So yes, we can have new lives .. we've proved that. Keep that chin up Michelle, your an inspiration!

[mcertonio]

@yolospat thank You! And you inspire me!

[DntSufferAlone]

love your videos, and i love that painting behind you! i also have fibromyalgia and am also a painter. i just started making my own videos too, you are one of the ones i have to thank for inspiring me to start my own videos to help spread awareness

[mcertonio]

@DntSufferAlone --Thanks babe! And you INSPIRE me!

[jdmit75]

I am hopeing I find a job. I havn't worked in a year. And of corse my familly just thinks I'm crazy though my new doctor says it's fibro myalgia and myofascial pain syndrome. Thank you for the positive inspiration. I myself went from being able to work 12 hour days then after about 17 years my true hell started even still with HIV as well I get no sympathy from my familly.

[ragegrrl]

(Dogs are cute!) I was told by my counsellor that I am going through grief, with the loss of my life. I was empowered by admitting to myself that I am in this new body & it means that I have taken control of my life & I am now doing better now that I am not "pretending" I am normal. I am confident enough to fight for my own rights& I can not wait to enjoy the rest of this new life. (I feel a little bit sad & frustrated, not a lot, & never guilty.) Michelle I hope you are having a good day today.

[mcertonio]

@deju357 --I AGREE! but NO ONE will do it for us! As A singer I did SOOO many  Functions for other diseases and i found they get up alot more than we do.

[mcertonio]

@FeelaBustier I just read the comment from the 17 year old and I also wrote to her personal email. Notice HER COMMENT-- pretty much STOPPED her from committing suicide----- Sometimes I get tough and sometimes it works--

[mcertonio]

@DntSufferAlone Thanks BABE! Check out Flickr.com or Picassa, I have over 30 now

[mcertonio]

@FeelaBustier Sorry to disappoint you--But you missed another few emails-- After 8000 comments And I have tried to answer most-- I feel I can help-- I give it my best shot. I think her first few were advice to Everyone about something-- I am always HONEST and I do not give advice unless asked of. And I make mistakes thinking Someone said something--When it was the person that shit on all of us and then removed their comment. Read on then you can judge me! LOL At least i try