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Usher Syndrome Retinitis Pigmentosa Improvement

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Uploaded by on Dec 22, 2009

Usher syndrome Improvement

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  • Hello there! I'm piqued by your vlog but can't understand it because I am fully Deaf and use sign language full time. I have Usher Syndrome as well, end stage. If you could get someone to transcribe your vlog, it would be helpful. Thanks. Best of luck. - Coco

  • Yes.... I do agree that the cost of such treatment is way beyond most peoples wallets and should be made more affordable. My friend has R.P. and I cant even begin to imagine how it makes him feel, to know that some thing can be done to improve it and just cannot afford it and also the travel expenses which has to be for 2 persons for the obvious reason, shame on the Governments.

  • what a beautiful young lady..such a pity that people like her have to live with chronic illnesses...life is unfair sometimes..it s nice to see she is a fighter...

  • As a medical doctor, I am very pleased for this young lady, if this gave her some results. The price is JUST TOO EXPENSIVE AT THIS POINT AND NEEDS TO BE MADE AFFORDABLE. People like this young lady, need multiple treatments, and at $25,000 per treatment, it's virtually impossible to raise the money for even a single treatment, let alone multiple treatments. So sad, as it can be offered at a fraction of the price and then people won't as bad with less than desirable results.

  • Our adult children have also had the procedure...it's been a big help to their vision.

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