Rachel is my girlfriend Cathy Allen's daughter, she is a 13 year-old with CHARGE Syndrome, she loves to cook, and entertain. She is deaf and mostly blind. She has a G-tube for feeding and a Trach for breathing. She just graduated from the 6th grade.
This was July 3rd 2008 at Kaboom Town in Addison Texas. The Band was Studio 54. They joined Rachel at the front of the stage for a song.
I have a son with CHARGE and the word that comes to mind when I think of him ...is Inspirational and Strong...to have endure the things they have already undergone is nothing but a miracle to say the least and will to live on their behalf. I loved the video!!!
coraraz 11 months ago
fantastic video!
PediatricHomeService 1 year ago
cute!
abcmusicable 2 years ago
Certainly brought a smile to my face and hope that my CHARGEr interacts like that when he is older!
TrachMom 2 years ago
I have a daughter with CHARGE as well and seeing others with CHARGE do so much really makes me smile and gives me so much hope!
crystalm1476 2 years ago
Wow, she is amazing!! Great to see that as a mother of a young child with CHARGE!!
louiserail 2 years ago
We really enjoyed this moment with Rachel... You are awesome Rachel
studio54band 2 years ago