POTS - A Glimpse

Help raise Postural Orthostatic Tachycardia Syndrome (POTS) awareness.

Category:

People & Blogs

Tags:

• Postural
• Tachycardia
• Orthostatic
• Floriana

[Dynaverse]

Hang in there!, god less, pray!

[fballmen]

@Dynaverse Thank you for the "hang in there" and your advice to pray. I'm not so certain the 'godless' part though.... I guess you may have missed the 'b', right?

[AlmaLuna1]

did you find out why you have such urine output?

[fballmen]

@AlmaLuna1 : Not really... the good news is that it stopped after many months of IV fluid treatment... It could have be autonomic dysfunction (sympathetic overactivity), could have been heart-kidney response when the heart cannot pump enough oxygen and nutrients to meet the body's needs. The chambers of the heart respond by stretching to hold more blood to pump through the body.

[fballmen]

... This helps to keep the blood moving for a short while, but then the heart muscle walls weaken and are not able to pump as strongly. The kidneys migth have responded by causing the body to let go of fluid (water) and sodium.

[jrdfreckles11]

Perhaps you should ask to be tested for Diabetes Insipidus, failure to produce antidiuretic hormone, not diabetes melitus/high blood sugar. That could explain why she urinates more than she ingests....just a thought.

[fballmen]

@jrdfreckles11, Good thought, I'll look into it! Thanks! :)

[fballmen]

roniron22bd, you are no neurologist, nor an MD, you're just an attention slut that thinks he's funny....

Get a life!

[DAROMSninja]

Living sucks.

[Kkman123123]

I have POTS to, Hang in there! It does get better im 16 and ever since i've been put on medications it got a lot better! Hang in there!

[tajakica1]

@fballmen I know exactly what you are going thru. I started having these same symptoms about 13 months ago. I have gone to dozens of doctors and has just been diagnosed yesterday with Pots. I will remember you in my prayers. I was so scared with the onset that I really thought I was going to die. The fact that has kept me is that God has our lives in his hands and he has a purpose for us. Thanks for posting this video. Remember Jer 29:11, God has a plan for your life and it is not calamity

[sexette]

Please, please stay up on your meds. I hate taking mine myself. I was also diagnosed with Tietze Syndrome along with the CFS/FM. It felt like I was having a heart attack. I hope you have more good days than bad.

[angelupofficial]

thank you for sharin this video with the public. I really feel so bad about you having to be sick like this. It doesn't matter tha I don't lknow you. I will pray for you. I have fibromyalgia. And, I thought it was the worst thing out there, until i started learning about pots. Keep the faith & Hope. We don't understand why these things happen or why. They're aren o answers. Only suffering. But, take comofort in knowing that you are loved and you'll have better days ahead.

[audiomosaics]

@fballmen I hope she is doing better..terrible to have to suffer like that. Poor thing. I will remember you in my prayers.

[ashleygf24]

honey ive been there too. i know its no fun. i was diagnosed a year ago

[asktunes]

My heart goes out to you. I was diagnosed with POTS as a secondary condition to Ehlers Danlos syndrome, so I've been there. I'm at a place in my life where I'm pretty functional but it's a delicate balance! Salt/water/gentle daily exercise, an extremely limited diet all help. I hope you're doing better! xoxo

[TheMoviewatcher86]

Despite the situation, it is beautiful to see this couple take on the health matter together. The husband seems very inquisitive to find a solution that will make his wife better, kudos to you man, you are an admirable person! As for the wife, I hope since the upload of this video there has been improvement to your health and that you don't have to live this way every day. I wish you the best in your health and it would be great if you could post an update! Take care.

[chrdaci81]

Hope you are feeling better! I recently have been somewhat diagnosed with POTS there seems to be very little known about this greatly misunderstood illness. I have seen doctor after doctor, test after test. God bless you for sharing your journey! Thank you

[jaquirouin]

Congratulations! Que valentía y fortaleza de poder hacer este video cuando tienes los peores síntomas.I hope that you are most better!