Rare Diseases Day - Tuberous Sclerosis Complex (TSC)

Loading...

Sign in or sign up now!
Alert icon
Upgrade to the latest Flash Player for improved playback performance. Upgrade now or more info.
2,126
Loading...
Alert icon
Sign in or sign up now!
Alert icon

Uploaded by on Mar 1, 2010

Video clip from ABC7 Chicago of Ed Sitar being interviewed regarding Rare Diseases Day and Tuberous Sclerosis Complex (TSC)

Category:

Nonprofits & Activism

Tags:

License:

Standard YouTube License

  • likes, 1 dislikes

Link to this comment:

Share to:
see all

All Comments (5)

Sign In or Sign Up now to post a comment!
  • Count me in I have had Tuberous Sclerosis for over40+ years I would like to know more ,

  • I am 21 year old who lives with this gift, everyday is a challenge to us, from people staring to being picked on for having "pimples"... I honestly wish that I could talk to somebody like me who shares this condition with me just to ask some questions and share story's, is awkward trying to explain how I feel to somebody who doesn't live with this... Still living strong!

  • I am a teen with TS. This really needs to be noticed more by the general public.

  • If this gives you any hope at all, I am 30 and had been diagnosed with TS at 6 months old, I had a craniotomy at 9 yrs of age and went 20 yrs without having a epileptic episode...if you would like to talk about anything, you may contact me.

  • My husband and son have this disease. I did not know there was a rare diseases day. There is walk and some fundraisers done for this however not nearly as much as more well known diseases.

Loading...
Alert icon
0 / 00Unsaved Playlist Return to active list
    1. Your queue is empty. Add videos to your queue using this button:
      or sign in to load a different list.
    Loading...Loading...Saving...
    • Clear all videos from this list
    • Learn more