Welcome to the National Foundation for Ectodermal Dysplasias (NFED).

An introduction to the NFED, the world's first non-profit foundation dedicated solely to helping those with ectodermal dysplasia and their families. Hear doctors, dentist, affected individuals and family members discuss the class of syndromes that make up the ectodermal dysplasias.

Category:

People & Blogs

Tags:

• ectodermal dysplasia
• hair abnormalities
• teeth abnormalities
• fingernail abnormalities
• nail abnormalities
• NFED
• skin abnormalities

[Cyndariss]

This is simply amazing! I am an artist that does donation drawings for different foundations, I am unable to donate money strait to due to our current state of economy here in America. I do donations to foundations that embrace difference and allows people to be their selves. I would love to help you out with this foundation. I am not the most experienced artist but I am willing to help however i can. I may only be 14, but i feel i can make a difference. Thank you, so much.

[nando6163]

soy de colombia y tengo mi hijo que tiene esta enfermedad me gustaría saber que crema es buena para su pielecita y si esto tiene alguna solución físicamente y si aqui hay fundaciones muchas gracias. agradesco a la persona que me pueda dar esta información

[joszyism]

I am a 64-year-old woman with hidrotic ectodermal dysplasia. I have problems still with people staring at my hands and thinking i have a contagious disease.

It is so good to know there is a group out there helping people like me.

I would love to attend one of the conferences. Keep up the good work.

[hyperswivel]

As an ED affected male, I was never interested in being in the groups. They made me feel like I had a problem, and here's all these other people with that problem. My coping mechanism was to convince myself I didn't have a problem and that I was as normal as the next person. Now that I'm older (29) and living a full, successful life I feel like I should probably get involved in sucha group.

[3stepandrun]

@AnielloNASTASI aniello, this is jesse, glad you finally get to see what i have. :) see how they look like me. that's why donovon looked like me.

[AnielloNASTASI]

OMG, my friend has this and he never told us what is was now i know.

[22maet]

wheeh....... i hope there will be foundation who care for the persons having HED here in philippines

[sharall]

Most awesome person in the world with HED is Michael Berryman, he is absolutely awesome!!!!

[nobodymm]

Thanks for the info.

I heard about HED on Iowa Public radio today, they were chatting with Bonnie Rough, who has a new book out (maybe its not new??)

Anyways, thanks for helping me to understand and accept people with these differences.

[lovemextender]

Mary you are an inspiration to us all!!!