Family with children with Autism have to fight a buraucracy, even when what they are asking for is in the Legislation. Hundreds of families across Alberta experience the same/similar situations year after year. The FSCD workers are misinterpreting what their own act states and enforcing that parents go through a grooling process that is not legislated. All 3 colleges, College of Alberta Psychologists, College of Speech-Language Pathologists and Audiologists and Alberta College of Occupational Therapists state in a letter dated April 2009 that they do not support their members participation in the MDT process!
Great job bringing so many important issues to the public media! We live in Edmonton, though, and have always been able to show a 5-min video of our child to the panel. It just highlights what she is able to do in each therapeutic area: SLP, OT, and PT, plus socialization. Instantly, the panel sees the level of my child's disability far more clearly than any reports or service plans can convey.
NicholetteW 1 year ago
Now, couple the latter scenario with a family who is not as sophistocated in navigation, nor a persistant voice... The end result is dire for the child. Early intervention and continued support is key to success.
tdhssp 1 year ago
Obtaining services for children who require intervention should not be a maze for parents. Often, it is the caseworker one is assigned who makes all the difference: Some are wonderful information providers, but others are either not as knowledgable - or - sadly, trying to save dollars and will not willingly divulge options.
tdhssp 1 year ago
Way to go, Allison! Good job bringing awareness to these issues on behalf of the countless families facing similar bureaucracy red-tape. You are absolutely correct - as another friend of mine, also a social worker and mother of a child with severe disability - relays: Having an "inside edge" due to career has, at least, made navigation of the system somewhat more accessible, that this is an issue is a problem in and of itself. The system should NOT be difficult to approach.
tdhssp 1 year ago