"We cannot afford to waste time"

http://www.telethon.it/en - Alberto Fontana was born in Milan in 1971. He is married and has three children and is the director of a social cooperative.
Since 2004 (this is his third consecutive mandate), he has been the president of the Italian Union for the Fight against Muscular Dystrophy (UILDM), the association that in 1990 ensure the creation of Telethon in Italy. Since July 2009 he has been a member of Telethon's board of directors.
Alberto, who suffers from spinal muscular atrophy, as always supported scientific research on genetic diseases, considering it a fundamental means for finding a cure.
During the 2004 television marathon, together with Telethon's founder Susanna Agnelli, he appealed to the President of the Lombardy Region asking for the creation of a multi-specialist centre to be set-up for people suffering from neuromuscular diseases, based on a wish to place the patient at the centre, providing diagnostic and therapeutic assistance following the most advanced international criteria. The request was accepted, allowing the UILDM, Telethon, the Niguarda Hospital and the Italian Amyotrophic Lateral Sclerosis Association (AISLA) to give life to the Serena Foundation that at the end of 2007 inaugurated the NEMO Clinical Centre (NeuroMuscular Omnicentre).

Category:

Nonprofits & Activism

Tags:

• Alberto
• Fontana
• muscular
• dystrophy
• association
• uildm
• marathon