SURGERY #3 at CEDARS SINAI For CHIARI MALFORMATION

MICHELE HAD TO GO BACK TO THE HOSPITAL APRIL 19TH 2008, DUE TO COMPLICATIONS FROM OTHER CHIARI (key-ARI) MALFORMATION SURGERY'S AND TO DEAL WITH SYRINGOMYELIA (sear-IN-go-my-EEL-ya).

Category:

People & Blogs

Tags:

• CEDARS
• SINAI
• ARNOLD
• CHIARI
• MALFORMATION
• JON
• SURGERY
• LUMBAR
• PUNCTURE
• SYRINGOMYELIA
• (sear-IN-go-my-EEL-ya).

[raulandmichele]

Thank to everyone that has sent some much love my way.. it's been 3 years since my 3rd surgery. Although I am no longer leaking CSF any more I still suffer from headaches on a daily basis. My I stay strong through the love of family and friends. I pray that all of you that have gone through surgery recently that you will not have to have has many as I did. Thank you again for all your support everyone has a lot to do with my recovery :)

[breckur1200]

I'm getting my surgery in 5 days. I'm very scared and hope that everything goes ok. I'm 10 and just am thrilled that you had to go three surgeries. God bless you.

[raulandmichele]

@breckur1200 I am so sorry to hear that someone so young has to go through this. But I know that everything will come out perfect for you. I hope you have a speedy recovery and my prayers are with you..

[tammydoll1]

@raulandmichele my name is Tammy and I have been suffering from complications from my surgery 6 years ago. I am now 41 years old and I can relate to you. just helps to know there are people out there that you have never meet but can still touch there life. thank you for sharing you story.

[danumm555]

@StephanieRising

I am concerned that in the US, surgery seems to be routine for Syringomyelia. Here in the UK, I have been told by a neurosurgeon and other specialists that it is dangerous because the spinal chord is involved and can cause blinding headaches for months. Also, there is no guarantee that the symptoms will not reappear. In a system where doctors make a lot of money from surgery, can you trust them nto to be carrying out unnecessary treatment? At least in the UK they have no bias.

[StephanieRising]

Hope you're doing well. What a champ! i was diagnosed in 9/11 after 3 yrs of significant symptoms. Having surgery asap after the new year. Considering all the risk, wish there were a way to avoid this but symptoms are getting worse. Thanks for posting so others can have an idea of what to expect.

[pcs1rxf]

thank you so much for sharing your story......I hope you are doing better. My mom is 61 and 4 years ago they diagnosed chiari but she only had some symptoms. Now 4 years later her symptoms are stronger, wednesday she is going to the doctor again. I hope she doesnt need the surgery.............we will see what happens....thanks again!....I will keep you posted....Rudy

[StacyStacia]

Good luck to you. My brother was 33 when he was diagonosed, had 2 surgeries. He suffered for 10 years with this. His Chiari was extreme and he recently passed away, he didnt want to have any more surgeries.

[motorsportstuning]

Man I just found out I this disorder =( I'm going for surgery soon.

[canadianwing]

I am 3 months away from my first decompression surgery. you really share a lot of info that I been seeking for. thank you and may you stay strong!

[lysmarisanchez]

I had my chiari surgery last August 2010. Before and during surgery my family, friends, and church prayed for me. during surgery my oxygen went low. When I came out of surgery and passed to my room my surgeon asked me how I was and I told him I waas fine just tired. The next day I was walking and eating but dizzy and the day after that I got sent home because I was doing great. A week after surgery I was completely normal. It was painful but I made it and only needed one surgery :)

[breckur1200]

Thank and can you still do all sports. Like swimming or soccer?