Pediatric neurologist, neuromuscular clinician, clinical trials researcher, and member of FightSMA's Scientific Advisory Committee, Dr. Bob Leshner discusses SMA type 1, the most severe form of Spinal Muscular Atrophy (SMA) - a deadly crippler and the number-one inherited genetic cause of infant death. For more information on SMA, please visit http://www.fightsma.org.
UPDATE: Dr. Leshner is now with Rady Children's Hospital and The University of California San Diego
Thank you to Metro Productions (http://www.metro-productions.com), our partners in this fight, for their generous gifts of time and expertise in production of this videos.
Thank you Soo much! All of this information has helped me understand and comprehend SMA1. As I her the Drs say dis it became really hard for me Jus to think that dis was really happening.... my God son has been in dis fite since he got diagnosed at 2mnths of age... he is now 7mnths and is giving it all he can!
SuperJg1989 8 months ago
this very sad to go through my cosin allisa has this type one dises she is fighting through as she pases age 2 by 5 months all we can hope for is god to help
tooodoodjmf 11 months ago
Excellent videos you guys!! Congratulations!
Shira2 2 years ago 2