What is Prader-Willi??
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After getting all the textbook explanations of PWS when our daughter was diagnosed 3 years ago, this was the first video we watched. Seeing Dante was also the first glimmer of HOPE we had. Thank you for posting!
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Thank you so much for taking the time to share your story. All blessings to you!
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yes please I need all the help I can get thanks
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hey if you need some help I could tell you about some agaiencies that you could go to to help yourself !! <3 please message me back
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I'm 13 and has PWS I'm 250 and trying to exercise But keep gaining weight all the time please help I dont want to eat my self to death
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What a nice family.
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well done...quite informitive....I am just learning about pws and I hope to help raise awareness and show those who misunderstand pws that they are being cruel to people who cannot help it i have found some pretty disgusting attitudes toward it and when I try to set the record straight in a polite manner and explain more I was cussed out!!! anyway i like your video and I would appreciate it if you messaged back!
fairesthippie1 2 years ago
Hello! I am glad that you are helping spread awareness! if you ever want to help out our charity let me know!
violole 2 years ago
Boy are you lucky you live in ontario. I live in Manitoba and there is Nothing here in the form of proper supports for my PW sister Deborah. She is 35 and is in Toronto in a group home specializing in pw , and has been for 2 months. I was told today that she had only 1 year left. But now we have hope. Enjoy your child. They are truly blessed. Laurie
laurieZirk 3 years ago
Laurie, I am so sorry to hear about your sister's circumstances...that is why our organization fights to bring awareness and fundraising to this cause...dont give up hope!!
violole 2 years ago