Can't sleep because of kicking legs (a RLS variation)

My legs jerk uncontrollably when I'm trying to sleep. The kicking lasts 2-6 hours a night and keeps me from falling asleep. The movement is involuntary. This video is edited from 2 hours of trying to sleep one night.

The movements are similar but different from Restless Leg (RLS) and Periodic Limb Movements (PLMS). I don't have uncomfortable sensations and move my legs intentionally. And I'm awake and don't have the typical movement patterns or intervals of PLMS.

I've dealt with this for 15 years, seen a lot of MD's, and tried many different meds. 5 years ago, I was diagnosed with a variation of RLS called "Nocturnal Quiescegenic Dyskinesia" by the RLS Clinic at John Hopkins. There's additional information about it at www.kicking-legs.com Do other people have this?

Category:

People & Blogs

Tags:

• Restless Leg Syndrome
• RLS
• Restless Leg
• Periodic Limb Movement
• PLMD
• PLMS
• restless leg treatment
• restless leg help
• jerking legs
• leg jerks

[oscarlolage]

if you had this really bad and a girlfriend / wife, she would think your trying to have sex with her in the middle of the night hahaha xD

[lexrom80]

I feel so much better about myself now...thats fucked..goes to show people should be happy with what they got

[tracyp107]

@gmainspokane i can help him i had same probs please reply if he still has probs

[tracyp107]

are any of you on anti depressent pills they make it 50 times stronger ive stopped taking pills and i eat liver lots of it .this torture killed me for 7 years its terrible .i promise you get off pills and symptons go after 2 monthes dont take the parkinson drugs they help yes but side affects bad was gambling with me .give up anti dep pills if your on them trust me

[missionmountains]

@gmainspokane

I know about the torture you are describing.

I won't take drugs for my jerks and RLS but the thing that seems to help the most is folding both legs under my seat while lying on my back , then arching my back a bit to stretch the quads. Sometimes it takes 4 or 5 tries when my hamstring cramps. Sometimes I fall asleep like that and wake up with numb legs but at least I can get to sleep. If that doesn't work, I sometimes walk in bare feet on a cold floor or outdoors.

[missionmountains]

The only thing that seems to help my jerks and RLS is folding both legs under my seat while lying on my back , then arching my back a bit to stretch the quads. Sometimes it takes 4 or 5 tries when my hamstring cramp. Sometimes I fall asleep like that and wake up with numb legs but at least I can get to sleep. I also have MS.

[atomicboooom]

@gmainspokane only thing that really works 100% is addictive Opioids.

[rottingkosherpiko]

I wake up every night having to put my blankets back on. Kicked them off (all three of them). Doctor prescribed me some pills that have done nothing. It sucks. I wake up more tired than I am at night.

[gmainspokane]

My husband just went downstairs again because his legs are kicking so much. This is a frequent event even with requip at massive doses. Medication has also had the weird side effect noted by others; a craving to gamble. I just don't know how to help him, and Dr. have no suggestions. Anyone found a successful treatment outcome?

[thetruthergirls]

I get that in my legs (usually only right leg) and my spine. I find that the more tired I let myself get, the worse it gets. If I go to bed early, before I get too tired, it's not as bad.