Katelynn's Story
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Uploader Comments (missourimoores)
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i wanted to say how pleased i am that all turned out well with your beautiful daughter. my youngest son has unilateral retinoblastoma, was diagnosed sept 08 aged 6mths. hes done 6mths of chemo and the tumour still remains significantly elevated and uncalcified, atm there taking conservative approach with next options being radioactive plaque, chemo injections or enucleation. ITS WORLD RETINOBLASTOMA AWARENESS WEEK!!!!! SPREAD THE WORD 10th-17th MAY!!!!!!!!!!
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You've got a beautiful child, and I hope she lives a long and healthy life. God's got a plan for all of us, and obviously she was meant to stay here with you and bring hope to others with R.B.
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VERY sad beginning HAPPY ending. very touching... my name is katelynn too.... i feel so sorry for her but glad that she got a fake eye in the end!!
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This video is very touching. It reminds me of myself and shows me i'm not alone. I had my right eye removed when i was 5 in 1997 at Will's Eye Hospital. I WISH YOU THE BEST! You are a beautiful girl.
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beautiful beautiful baby... she has such a beautiful smile... i wish her all the best in life!!!
- Salman Ahmed, Pakistan (RB survivor at aged 2 in 1980)
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hugs
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What an absolute beautiful story, such a young child to go through a major life trauma. Your video has touched my heart, and I just know she is a beautiful young girl with a beautiful heart! And to who made this video you have given such inspiration....no really It couldn't have been made better. Much love, Monica
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katelynn u r a beautiful little girl. ur story touched me. my lil charlotte has bilat. RB and laost her r eye almost 10 weeks ago at 15 mo. old. we are still fighting!!! God bless kw and baby c
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Poor baby.. not fair that she went through that. Glad she is cancer free now.
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Did she have to go through chemo and radiation?
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Nice video. I was diagnosed with retinoblastoma in my left eye at 3 years old (hard to believe that's almost 14 years ago!) and had it removed by Dr. Hoffman from the Rhode Island Eye Institute. And I go to Jahrling Ocular Prosthetics on a regular basis to have the prosthesis cleaned and fitted. I hope Katelynn continues to remain in good health and best luck and wishes to you and your family.
darklegacy416 4 years ago
Thank you for your kind words. Your story sounds very similar to Kate's. We have heard a lot of good things about Jahrling. We may visit out there when Kate is a little older.
missourimoores 4 years ago
Great video. My daughter Verity is now 7 and she had her eye enucleated in May 2000. I am also a family contact for the Children's Eye Cancer Trust in the UK. I'm sure many newly diagnosed families will find Katelynn's story useful.
psymon4ever 5 years ago
Thanks. We have worked with a couple different families here in the states who are going through some tough times with RB and their children. We hope our Katelynn's story can be an encouragement to others as well.
missourimoores 5 years ago