Living with FM interview with Daneen and Darlene Akers

Living With Fibromyalgia: a Journey of Hope and Understanding is a documentary for the entire family. A free screening will be held in San Diego March 22 sponsored by the National Fibromyalgia Association. See livingwithfm.com for info. This video is an interview that aired on KUSI Inside San Diego March 12 with filmmaker Daneen Akers and her mother Darlene, an FM patient who was the inspiration for the documentary. Living With Fibromyalgia: Difficult to diagnose and even more so to live with, Fibromyalgia's main symptom is chronic pain. With new research and more patients coming forward, the need for family support has grown. Here to talk about her experience with this debilitating disease is Darlene Akers and her filmmaker daughter Daneen. They talk about their family's experience and the making of the film with Inside San Diego host Sandra Maas.

Category:

People & Blogs

Tags:

• Fibromyalgia
• chronic
• pain
• San
• Diego
• Akers

[ozwunder69]

but there is a little initial relief in knowing you are not going crazy and that is a single reason for all that troubles you

[utalice]

I have FMS and I was always feeling badly about myself because ppl thought I "didn't look sick". Finally, I had enough and now I just don't give a sh*t what they think, I'm too sick to care. It's so hard to make ppl understand you when you describe your pain to them because they can't feel it. If I could transfer how I feel to someone else for one day, they'd be in the emergency room begging for help. And I deal with this every day of my life.

[youdontlooksick]

You feel better now that you know the name?? I've known the name for 10 years, that didn't help me or my family. This is a very poor respresentation of what Fibromyalgia is all about.

[trees75094]

Wish they could have had more time to discuss FMS. I was struck that the interviewer said you don't look like you have the flu - HA! Wish she understood it's worse than the worse flu imaginable. Thanks for posting this.

[nala92]

this is so cool to see i am always on the web looking for fm stuff