Myalgic Encephalomyelitis (M.E.) is a debilitating acquired neurological disease which has been recognised by the World Health Organisation (WHO) since 1969 as a distinct organic neurological disor...
Myalgic Encephalomyelitis (M.E.) is a debilitating acquired neurological disease which has been recognised by the World Health Organisation (WHO) since 1969 as a distinct organic neurological disorder with the code G.93.3.
Myalgic Encephalomyelitis symptoms are manifested by virtually all bodily systems including: cognitive, cardiac, cardiovascular, immunological, endocrinological, respiratory, hormonal, gastrointestinal and musculo-skeletal dysfunctions and damage.
M.E. is a neurological illness of extraordinarily incapacitating dimensions that affects virtually every bodily system -- not a problem of medically unexplained 'chronic fatigue.' Many with M.E. are housebound or bedbound. People with M.E would give anything to instead only be severely 'fatigued' or tired all the time.
For more information, and to see a full symptom list for M.E. (available in Word or PDF format), see:
Also note that it should not be assumed that because you may have some percentage of the symptoms on the list that you necessarily have M.E. - many of them are common in a variety of other illnesses and it is the pattern of symptoms (and the acute onset type) which enables a M.E. diagnosis to be made, as well as the presence of a number of core characteristics and symptoms (and test results) which are always present in the illness, and without which a diagnosis of M.E. should never be made. (For example, damage to the brain, the CNS, which is visible on brain scans, and the unique form of muscle weakness/paralysis seen in M.E. and so on.) Even having a large number or percentage of the symptoms on this list does NOT necessarily mean a M.E. diagnosis is likely or even a possibility.
Appropriate tests should be conducted which can help confirm a M.E. diagnosis. If all tests are normal then a diagnosis of M.E. cannot be correct. M.E. is not the same thing as 'CFS.' See:
Like to rate videos and let people know what you think?
Automatically share your ratings, favorites, and more on Facebook, Twitter, and Google Reader with YouTube Autoshare.
Autoshare makes certain YouTube activities public on the services you choose. Select only the services you are comfortable with - like Facebook, Twitter, or Google Reader - to let your friends know what you like on YouTube. You can turn Autoshare off at any time.
Like to share videos with friends?
Automatically share your ratings, favorites, and more on Facebook, Twitter, and Google Reader with YouTube Autoshare.
Autoshare makes certain YouTube activities public on the services you choose. Select only the services you are comfortable with - like Facebook, Twitter, or Google Reader - to let your friends know what you like on YouTube. You can turn Autoshare off at any time.
This video has been removed from your Favorites. (Undo)
Like to Favorite videos and let people know what you think?
Automatically share your ratings, favorites, and more on Facebook, Twitter, and Google Reader with YouTube Autoshare.
Autoshare makes certain YouTube activities public on the services you choose. Select only the services you are comfortable with - like Facebook, Twitter, or Google Reader - to let your friends know what you like on YouTube. You can turn Autoshare off at any time.
listen. They tell me I don't know my limits because I haven't tried. After living with an illness for years, you pretty much know your own limits, right? Plus, I have trouble standing in a que in a shop - never mind standing at a check-out for hours being a cashier (or a job like this).
However, I know I'm very, very lucky to be where I am, and to have improved to get to this point, instead of being housebound like I was some years ago and like many M.E. sufferers are.
Best of luck with your parents! I agree, you learn every day what you limits are with this disease, you know them inside out, absolutely.
I'm sure you know standing more tahn you should, when it's ME, can be far far more serious than mere dizziness and so on...if you do it too much, can severely disable or even kill...sigh. I hope so much you can get a job within your limits!
and I seem to have a lot of problems with memory loss, as well as understanding work which I know I should be able to understand, talking normally (as in getting my words out and making sense verbally of what's in my head), and concentration.
Physically, I'm currently very worried about the fatigue and dizziness I still experience when on my feet, especially when stood still, because my parents are really getting at me to find a job. I know I need one involving sitting down, but they won't
this video is well-done. again, i recognize everything you speak of here, know it well as my own experience; and i was on the very severe end of illness, both neurological and physical.
Only thing I've found so far that helps is NADH, from most health food shops. It costs about £20 for a months supply, but it does help give you a bit more energy. I'd say it gives an inprovement of about 10%.
Hello and thank you. I have all of the myriad symptoms listed. A great struggle to get anyone to understand this illness in the U.K. 'Establishment' Medical Profession. I have a little boy who needs his mummy. Motherhood wasn't meant to be like this was it? I'm brokenhearted. Please listen. Thanks for the film x
im currently suffering from something like this...it's hard to get my doctor to do the right tests though, and it's getting more worse by the day. i wish i could find some help, my family is deteriorating because i am so sick...
Autoshare makes certain YouTube activities public on the services you choose. Select only the services you are comfortable with - like Facebook, Twitter, or Google Reader - to let your friends know what you like on YouTube. You can turn Autoshare off at any time.
Many, many thanks and God bless X
(See my page re the campaign to protect the disabled and chronically ill. Very important for all! Please sign the petition, via the link supplied.)
However, I know I'm very, very lucky to be where I am, and to have improved to get to this point, instead of being housebound like I was some years ago and like many M.E. sufferers are.
Thanks for the video.
I'm sure you know standing more tahn you should, when it's ME, can be far far more serious than mere dizziness and so on...if you do it too much, can severely disable or even kill...sigh. I hope so much you can get a job within your limits!
Physically, I'm currently very worried about the fatigue and dizziness I still experience when on my feet, especially when stood still, because my parents are really getting at me to find a job. I know I need one involving sitting down, but they won't
i hope you find reprieve.