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A symptom list: Myalgic Encephalomyelitis

Myalgic Encephalomyelitis (M.E.) is a debilitating acquired neurological disease which has been recognised by the World Health Organisation (WHO) since 1969 as a distinct organic neurological disor...  
 
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FreeBritain1 (1 month ago) Show Hide
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Wow, this is truly amazing. So very well done to you. Spot on!

Many, many thanks and God bless X

(See my page re the campaign to protect the disabled and chronically ill. Very important for all! Please sign the petition, via the link supplied.)
charmedjoey (2 months ago) Show Hide
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listen. They tell me I don't know my limits because I haven't tried.  After living with an illness for years, you pretty much know your own limits, right? Plus, I have trouble standing in a que in a shop - never mind standing at a check-out for hours being a cashier (or a job like this).

However, I know I'm very, very lucky to be where I am, and to have improved to get to this point, instead of being housebound like I was some years ago and like many M.E. sufferers are.

Thanks for the video.
AHummingbirdsGuide (2 months ago) Show Hide
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Best of luck with your parents! I agree, you learn every day what you limits are with this disease, you know them inside out, absolutely.

I'm sure you know standing more tahn you should, when it's ME, can be far far more serious than mere dizziness and so on...if you do it too much, can severely disable or even kill...sigh. I hope so much you can get a job within your limits!
charmedjoey (2 months ago) Show Hide
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and I seem to have a lot of problems with memory loss, as well as understanding work which I know I should be able to understand, talking normally (as in getting my words out and making sense verbally of what's in my head), and concentration.

Physically, I'm currently very worried about the fatigue and dizziness I still experience when on my feet, especially when stood still, because my parents are really getting at me to find a job. I know I need one involving sitting down, but they won't
heiwalove (4 months ago) Show Hide
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this video is well-done. again, i recognize everything you speak of here, know it well as my own experience; and i was on the very severe end of illness, both neurological and physical.

i hope you find reprieve.
Timebandit720 (7 months ago) Show Hide
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Only thing I've found so far that helps is NADH, from most health food shops. It costs about £20 for a months supply, but it does help give you a bit more energy. I'd say it gives an inprovement of about 10%.
theredmoon1 (8 months ago) Show Hide
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Hello and thank you. I have all of the myriad symptoms listed. A great struggle to get anyone to understand this illness in the U.K. 'Establishment' Medical Profession. I have a little boy who needs his mummy. Motherhood wasn't meant to be like this was it? I'm brokenhearted. Please listen. Thanks for the film x
deadline27 (8 months ago) Show Hide
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im currently suffering from something like this...it's hard to get my doctor to do the right tests though, and it's getting more worse by the day. i wish i could find some help, my family is deteriorating because i am so sick...
Lippinksi2 (9 months ago) Show Hide
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Yes, quite. Well done!
Lippinksi2 (9 months ago) Show Hide
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Yes, indeed. Well done!

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