Home Health Care

Taylee Gulas, now 7, was born without an esophagus and part of her airway. She has a rare condition called VATER syndrome, which causes a series of related birth defects in infants. For Taylee, that means she can't talk, eat, or swallow normally and needs a trach tube. It also means that she requires constant medical care, so the family has a home health care nurse 120 hours a week.

Category:

News & Politics

Tags:

• VATER syndrome
• McHenry County
• home health care
• nurse
• Northwest Herald

[franalations]

Thank you for posting this video. I am 23, and too was born with Vater Syndrome. I wish her and the family nothing but the best :)

[maggiemay2020]

I was also born with VATER and have had great experiences with home care. I had night nurses and nurses attending school with me until after 4th grade. Now I'm 19 and and my family is still very close with my primary nurse, we get together at least a couple times a year.

I have high hopes for Taylee! But one thing I think is important is patient knowledge and independence. My parents made sure I took an active role in my own health. Now I'm living away from home and doing well in college.

[sostonned]

I was born with vaters also my first surgerie was whene I was like 2 weeks old bc i was born with only a fistula they had to make me a anus

[Sakura71390]

Glod bless this little angel <3

[AngelQuestHomecare]

Thank you for sharing this video. It is a testiment to the importance of good home health care. We wish the best for this little girl.