thalassemia

thalassemia project from CIMSA Faculty of Medicine Gadjah Mada University

Category:

Education

Tags:

• Health
• Humanities
• Medicine

[sblnaidugenome]

NO ONE HAS EVER HAD THALASSEMIA

[timhoustontx]

Careful, there are about a dozen variations of "Thalassemia" -- alpha, beta, delta and variants thereof. Don't assume that someone on the internet talking about Thalassemia has the same as you or your loved one

[Cheesewyck]

It's ok to be scared but remember, you have it, it doesn't have you! I have thalassemia as well. I have alpha thalassemia, somewhere between trait & hemoglobin h disease. You can have a baby sure.... but make sure as well your partner gets their blood tested for the trait cause that's the ingredients to have a thalssemic major child.

[HM3Johnsgirl]

Well seeing how I was adopted yeah that would say something. I know a hell of a lot about my grandparents and great grandparents. Mother too but my father is a mystery. Really don't know alot of his medical history so maybe it cam from my father.

The only people in my family to be tested where grandparents (by law parents) great grandparents, brother/sisters by law, etc etc. Mother was tested and didn't have it but biological father never tested.

[missuniverse2002]

hi, all

im really worried coz i just found out that i have thallessemia minor.........although i have always been anemic......n pale...short height....n felt tired sumtimes........can u guyzz help me as i want to plan pregnancy......and im shitttt scared......

[Cheesewyck]

You must have been misinformed. You can't develop thalassemia on your own, it must be inhereted from your parents cause it's a genetic blood disorder.

[HM3Johnsgirl]

You know what's even more strange. Okay supposedly this occures more often in people with meditterain/asian/african american ancestory. I am caucasian with German/Swedish/Irish in me. Now I was born 3lbs 3 oz with an alcohol in my system. Maybe it's not only hereditary but also can be mutation.

NO ONE HAS EVER HAD THALASSEMIA IN MY FAMILY, I am the first one. That I am sure of they've all been tested.

[Cheesewyck]

I get leg and back pains all the time. Does that mean anything when I'm only alpha thal. minor? Now my left leg is swollen like it was 3 weeks ago.

[Cheesewyck]

You've pretty much told my story!! LOL I keep asking over & over, why is it minors get sick or feel like we're getting sick considering we don't require treatment?? My guess is because we may overlook things where majors are always in treatment. I hope my guess is right cause I am weak a lot more than when I was in my 20s. As for eating, I'm too much of a pig to worry...LOL.... but I know a lot of people who say they can't eat due to weakness.

[HM3Johnsgirl]

I have Beta Thalassemia minor supposedly and it is only supposed to show minor anemia. Well why is it so hard to get out of bed every morning, sometimes I can't I'm so weak. I'm so cold all the time, I have started shaking before when the temp is 72 degrees saying I'm cold. I hardly want to eat, I can sleep up to 12 hours and be tired still. I'm very pale.......does this sound like MINOR anemia to you?