Mieko news story 2008, Trisomy 18
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Uploader Comments (trisomyvoices)
All Comments (10)
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I'm so sorry for the passing of your beautiful little girl, but happy that she was happy & such a lovely little girl. Thank you for sharing your beautiful little girl with us. I know it must be hard for you, but seeing your posts of Mieko, you clearly have many lovely memories of a loving, happy little girl who would make any parent proud. What a beautiful little girl.
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What a beautiful angel. Her laugh is beautiful. She had a sparkle in her eye that touched my heart. Im so sorry for your loss, but also happy for you that you were blessed to be with such a sweet miracle for four years.
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Thank you for sharing your beautiful daughter with the world, we have just been told that our son who is due in May 2010 has a high possibility of having Trisomy 18. After all i have read the past week, its wonderful seeing that T18 babies can live more than "20 days at most" Thank you once again for sharing, and im so sorry for your loss xxx
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What a wonderful and totally DIVINE and HOLY life she lived through your love. She is in heaven waiting for her Mom and Dad. You guys are so brave and so wonderful. I am going to share your daughter's story with our Nursing Class so we can be better prepared to help other parents and children with Trisomy 18.
Thank you so much!
John C.
Santa Fe Community College
Student Nurse
New Mexico
2 years ago 2
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IT SEEMS SO DARN UNFAIR!
SNIFF SNIFF
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Mieko was a beautiful little girl! Thank you for sharing her story & this video with us. You have our family's sympathy; welost one of our children to posterior urethral valve syndrome & know how difficult it is to say "goodbye" to a precious little one.
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Mieko has given the world a beautiful example of love. She had a life workth living.
3 years ago 2
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Oh no. But what a miracle she lived for so long!
3 years ago 2
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Little Jacer says 'Bye Bye'by hartfamk62,579 views
- 3:41
Trisomy 18 Miraclesby southerngirl72j12,692 views
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Mieko Playing in the Stander, Trisomy 18by trisomyvoices580 views
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Lane's Trisomy 18 Journey from birth to 20 months old.by alihauber2,405 views
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Trisomy 13 (Patau Syndrome) Long Term Survivor Livingby ThereseAnnM9,762 views
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Mieko Feb-April 2008 slides, Trisomy 18by trisomyvoices845 views
- 4:46
Trisomy 18 - Rafael IIIby bbsniper0423,464 views
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Faces Of Trisomyby jfwolpert11,052 views
- 8:09
Mieko November2007 slides, Trisomy 18by trisomyvoices121 views
- 0:48
Mieko plays with her pal, Trisomy 18by trisomyvoices268 views
- 5:33
Trisomy 18 - Darcy Anne Ramos Celebration of Life Videoby bigblackbusa10,502 views
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Mieko plays piano, Trisomy 18by trisomyvoices831 views
- 2:20
Ava walking & talking 18 monthsby audrynafziger4,764 views
- 2:53
Hayliee Hope Marie Jones- Full Trisomy 18by 1979bridget7,551 views
- 0:23
Rebekah Faith with full Trisomy 18 Playing with Pinwheel for the first timeby buddzoo1,049 views
- 4:50
Six Days of Sullyby lightbox1115,666 views
- 1:01
Mieko, Japan (125334)by islandreefjob1533,722 views
- 8:12
Dekar, courtesy of NILMDTS (Now I Lay Me Down To Sleep)by DekarsMom12,448 views
what took her life ,the heart condition? and im so sorry,but yet she overcame alot ,amazing, ty sasha
scottandsasha 2 years ago
Mieko succumbed to pulmonary hypertension. The surgery to close the hole in her heart stopped it for a while, but then it returned. It's a very difficult condition to treat. We're not sure if further treatment would have made a big difference, but we wish there was more we could've done. Thank you for the kind words.
trisomyvoices 1 year ago