The Breaks
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Uploaded by SongSpeckels on Mar 26, 2007
My first film. Autobiography about Osteogenesis Imperfecta.
http://www.songspeckels.com
Uploader Comments (SongSpeckels)
All Comments (31)
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Why be careful, i have OI type 1 and have never been to careful. Yep broke a lot of my bones but living life to fullest. Been around the world, ride a bicycle, ride a longboard, jumped of cliffs, did everything i wanted to do. Now i'm recovering from a hip fracture but yeah thats the risk i am willing to take. @nym4life89 sorry to say but you don't grow out of it, in your 20's and 30's you maybe don't break that much but after 35, the risk of getting fractures increases.
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I loved the film... I dont have oi, but im doing a documentary of OI for the brazilian association of oi... thanks for the lovely history! jeff
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acually it is, I think. it was very bad when i was young but with pamidronate and roddings, things are better. my bones are ALWAYS sore though...
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I was born with OI type1 and I have had over 20 broken bodes and then had 2 broken ribs and ACL resconstruction as a adult. This runs in my family My son, My Mom, My Little sister, My grandma, and 2 uncles and 3 cousins.
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im 15 and i have about 60 breaks and 20 surgeries but i walk like an normal with normal bones i maybe swing from and back a little but thats disapears :D
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i have type I....about 30 breaks including the skull and vertabrae, its ok though cuz it aint that big of a deal cuz with type I you tend to grow out of it as you get older
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I'm martin, 21 years old, lawyer student. i have OI, type 3 i had like 50 fractures when i was kid, mostly of them in my legs i had also 7 surgery's, i walked in 2001, but then, one of the metal bars, inside my left femur, get broken, and i don't walked anymore, i hate doctors since that day, i cryed alot for that, and i thinked on kill myself. and i guess, for so many X-Rays, my hormonal system is bad, doctors ruin my life, and i can't do anything about itnow, i'm on wheelchair, is unfair. >:-(
MetalDragon1988 2 years ago
I think doctors are more interested in the science of OI because is is so rare, rather than the patients well being. I alsotoo had many unecessary x-rays as a child. My mom finally decided to put a stop to it. I have looked at some of her old calenders, and there are months after months when we went to the doctor almost daily.
SongSpeckels 2 years ago
another OI patient here. 86 breaks mostly to my legs. i am 27 now, and have a severe bow to my right tib/fib. walking with a limp since 2001 :o) due to get my leg straightened this year. wish me luck!
probroandy 3 years ago
Best wishes and Good Luck!
SongSpeckels 3 years ago