Ehlers Danlos Syndrome
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@chrismanlol00 you're an idiot. First off, you don't have 12 friends with EDS. I have it and my cousin has it and those are the only two people I've known personally throughout my life. It's a pretty rare genetic disorder and the odds of the majority of your social circle having the disorder are slim to none. Second of all there are a "group" of inherited disorders, that "group" being all different types. One has more effect on joints, and you don't just "learn how to NOT dislocate jesus christ"
ratchelovexoh 1 week ago
@chrisman it must be a lie because you have some friends who have never had this symptom? How ludicrous! How about "They have different experiences of the same condition"? I have friends who are diabetic who have both their feet, you wanna tell me anyone who has lost a foot with diabetes is just a liar? Idiot.
RoseRodent 1 week ago
@sarabaas is there another way to find this on facebook, cuz it brings up sports teams instead o.O and I'm interested in knowing more about this
Desieluv 1 month ago
I have EDS severely... and yes... its true... even having sex can be difficult! having those hips dislocate everytime you try! it gets exhausting! you literally wake up and have to relocate everything! i am putting my shoulders back in twenty times a day, my hips 15 or so, my ankles and wrists non stop... hell even my ribs pop! i use a wheelchair as my hips wont stay in place at all when i bear any weight on them.... its a horrible disease!
Noodlebum87 1 month ago
I'm hypermobile and get subluxations all the time. Only dislocated a joint thrice, but injure my ligaments a lot. I haven't pursued an EDS diagnosis yet, as it's possible I have benign hypermobile joint syndrome instead. Trying to keep my body as strong as possible.
luckypharms 3 months ago
@dacksoldier Dosent sound like you have a mild version of eds to me if your dislocating all the time, im hypermobile but dont dislocate maybe cause ive always kept my body strong but i get ligament injuries all the time.
LucaBlightBadass 3 months ago
that guy looks like Matt Lauer
Tatertawt24 3 months ago
@peterhejlejensen These wonderful people married each other AFTER both of their spouses left them because of their condition. The loving mother did not know she had EDS at the time she had her children. Alberto is a special man to bring this wonderful woman and her children into his life. 90% of us are NEVER diagnosed. It is not uncommon to be diagnosed after having a family. They are facing head-on, with courage their difficult journey.
PrettyIll1 3 months ago
1st, all of this is a lie :) I have 12 friends that have EDS, they NEVER have joint dislocation, but they have stretchy skin. Its funny because this viedo is a lie. You need to fucking learn how to NOT dislocate jesus christ _-_ I love hanging out with them because it is SOOO cool to stretch there skin Ehlers-Danlos syndrome is a group of inherited disorders marked by extremely loose joints, hyperelastic skin that bruises easily, and easily damaged blood vessels
chrismanlol00 3 months ago
@sarabaas
Hi, thanks for the information. I will be certain to join the group :)
I've already been diagnosed and I am undergoing physiotherapy. I have other symptoms too (fatigue, joint pain, hypermobility) but the dislocations are the worst. I am lucky because, after watching this, I realise I must have a less severe case of EDS. The physio has been going well. My legs (particularly my right one) have been displacing less frequently.
1990ccoleman 3 months ago