my life with DYSTONIA

i am IRA....i'll be 35yrs old this month. i have Generalized Dystonia, a movement neurological disorder. it affects my neck (ST - Retrocollis), my jaw (oromandibular) my arms, my back, my vocal cord, my feet.....muscles could b spasms,shakes and twist. its sore and sometimes hurt.
ya its hard to cope with.....i spend most of my times at home esp. my room. any comments?

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[RalGash]

Are you able to eat/drink on your own or do you have to use a g-tube?

[irafeb]

hi RalGash,

no i cant eat in sit position must lay,, i drink help by straw.... i ve trouble in eating............ like war to me:P

[irafeb]

and im just a weak person .... its Allah's will

[irafeb]

286. On no soul doth Allah Place a burden greater than it can bear. It gets every good that it earns, and it suffers every ill that it earns. (Pray:) "Our Lord! Condemn us not if we forget or fall into error; our Lord! Lay not on us a burden Like that which Thou didst lay on those before us; Our Lord! Lay not on us a burden greater than we have strength to bear. Blot out our sins, and grant us forgiveness. Have mercy on us. Thou art our Protector; Help us against those who stand against faith."

[irafeb]

Amin ya Robbal alamin fot all ur duas .. jazakllah khair every1.... Allah knows the best for whom HE (swt) loves.. HE (swt) definietly gave trial to the prophets (saws) even more more harder than us who suffer.

QS Albaqarah 155. Be sure we shall test you with something of fear and hunger, some loss in goods or lives or the fruits (of your toil), but give glad tidings to those who patiently persevere,

[irafeb]

La hawla wala kuata illa billahil adhim

no power at all except fr Allah

ALHAMDULILLAH

:) heeey plsss dnt look at my teeth :P very bad bad teeth

[LookingForJannah]

The Prophet (peace be upon him)said: "No fatigue, illness, anxiety, sorrow, harm or sadness afflicts any Muslim, even to the extent of a thorn pricking him, without Allah wiping out his sins by it." [Sahîh al-Bukhârî and Sahîh Muslim]

[zahratalain]

Asalaam Alaykoum sister.

Subhana Llah. AlhamduLillah.

Sis, May Allah SWT increase ur faith and make this test easier for You and reward u L-Jannah. 'Amiiin'

[cottoncactus]

i'm not muslim, but dystonia always makes me think of Luke 13:10-13 of the Bible when Jesus heals a woman who had a spirit inside of her for 18 years that crippled her so that she could not stand upright, and was always bent over, just by laying his hands on her. I pray that you will be healed, and of course just according to how i know Jesus as healed me, I hope he heals you, too... God bless.

[TheSevation]

I'm sorry, I dont have the same religion as your's but it dosen't matter...as long as you have faith in who you belive it, you'll be healed.

[aprilaprilaprilapril]

It's amazing! You have this disorder but you still look beautiful.

[blackrain1022]

As Salaam Alikum may Allah make it easy for you . I have a form of this . will pray for you . Salaam

[01010202p]

u're really brave sharing this with us, i got dystonia in a -by far- less severe condition but i somehow understand u, wish u be cured

[IbnDarwish]

O Sustainer of humanity!

Remove from Ira the adversity.

Heal her - You are the Healer.

Let it be a healing that does not leave an ailment. Aameen!

[yojorden]

thank you for sharing Ira; as a medical student it helps me understand what these diseases really do to people. I think you are awesome for being so open. I wish you the best and I hope you get the support you need from your god.

[tiffanii31]

Subhanallah.

keep fighting. May Allah always be with you. :')

[bennasdwarf]

Thank you for sharing this. I, too have dystonia, only mine is not as severe. Thank you for sharing your courage and story with us.