Suffering from M.E (Myalgic Encephalomyelitis)

I am so sorry that you are alone 24/7. But you may think that way, and it may look that way, and it may feel that way. No matter what you think, the fact is that you now have us, you now have a chance at telling the world something about your ailments. If needed, we need to redefine terms. I wish I could start a 'Dysautonomia Hotel". Highest Personal Regards, Dr. M

Thank you for your regards. I actually have ME/CFIDS aka chronic fatigue syndrome. I write letters to my elected officials and to the media as often as I can.

Hi mroy99, It is a gift to be able to write. Can you get our 'line' and keep touch with me? CFS and dysautonomia have so much in common. I'm sending my book out to a couple of people; send me a mailing address ASAP and I think you will enjoy it. Stay with me! Tell your friends, family, your church. I need to represent a larger population of people, so I have more political influence on increasing the research endeavors in these regards.
Chin Up! We are on a Mission! Your Servant to help, Dr M

Ibid.

I have seen this video over and over, and I am glad that it was one of the first ones that I saw. It drew me in to YouTube, drew me in to the plight of those with rare syndromes, and it accentuated my profound interest in helping the sick. Please pray that God continues to lead 'dysautonomia' into the right people that can do the most good. Highest Personal Regards, Dr M

I feel I am missing out on so much, as I am unable to hardly talk or walk some days, I hurt so much, head hurt, feel ill, so tired I cant keep awake. I have piled on the weight that once a slim, healthy girl with everything to live for, and now I see this person who dead inside. I have no job due to constant time off work, on top of ME, I have diabetes, asthma, IBS and CTD. I love to hear from others serious suffers too.

I'm sorry especially that your head hurts. Combined with being so ill, headaches have many causes. Can you describe the headaches more? How often do you get them? What pain relief/meds help with the pain? When you feel the headache coming on, can you take a med right away, to starve off the intensity of the headache? Highest Personal Regards, Dr. M

I watched this video and it made me cry. I have severe ME and some days I cant get out of bed and I feel worthless, and I cant keep up the world. I say things I dont mean to my lovely boyfriend, its hurts me so much.

Hi louiseacars, I just love this video, and it hits home with me, as I have dysautonomia. You are not worthless and it is not coincidence that we have 'found' one another. I seem to be the 1st MD to talk to fellow comrades and am so happy that my words are piercing. God Bless Us All for our impatience, for our sins. Teach us to forgive. And get this doctor here to a place where she can be used for the Cause of these diseases. Highest Personal Regards, Dr. M